Never a dull moment, they say. And here, in my life, it’s true.
I just walked into the room which houses my main household computer to find a hole in the wall. My autistic son has learned not to put his fist through the window, it seems. That was so two years ago. And now there is one more thing to add to the list of repairs on my house.
We’ve been through the behavioural training. I’ve been told over and over again to ignore the behaviour I don’t like and pay attention and praise the behaviour I wish to continue. But I can’t be with him all the time. This is what happens, apparently, when I ignore the yelling. Most of the time it actually works. Once in a while, I pay the consequences.
It’s an ongoing struggle. I’m sad to think that I might not always be able to take care of him on my own, but it’s a fact I have to face. He needs the influence of a man in his life – he’s eighteen years old. I don’t have one for him, and his father not only lives elsewhere, but that elsewhere is now hours away instead of across town where he lived up until this summer.
Sometimes I feel like I do nothing. I can spend hours some days, just writing. Other days I’m completely overwhelmed. Least of all is the stress of not knowing what’s coming next.
Such is life with an autistic child…. adult.
December 11, 2013 at 3:45 am
A single mum with an autistic child? Man that must be tough, Linda. I have always wanted to work with autistic children. I think underneath the surface, they have the purest of hearts and we could probably have a thing or two to learn from them. Your strength is inspiring.
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December 11, 2013 at 8:21 am
Thanks very much 🙂 It’s a lot of hard work but it’s very rewarding, as I can imagine it might be even if it wasn’t your own child. Perhaps you should pursue it as a career – or perhaps there’s a community service where you could volunteer. The world needs such people. 🙂
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November 26, 2013 at 10:25 pm
I wish he wouldn’t hurt himself. Better that wall than him, but oh my, I can imagine your frustration at handling it alone. You must know what to do better than I.
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November 26, 2013 at 10:29 pm
Sometimes I know what to do, sometimes not. It’s still a parenting thing… it’s the same for us all.
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November 26, 2013 at 10:38 pm
You’re right about that. Not a one of them is the same, and they do not come with manuals.
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November 27, 2013 at 8:40 am
Hard as I looked, I couldn’t even find a footnote on any of them.
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November 26, 2013 at 3:04 pm
I can only say that you must be an amazing parent. I’ve put my parents through hell with my suicide attempts and I know that patience is a hard thing to have. I know that their patience has broken several times, but then it’s just met with defeat because they can’t do anything about it. I hope to never be on the other side of the equation, I suspect that it’s harder than being ill.
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November 26, 2013 at 4:55 pm
Oh, I don’t know that it’s harder, though when my son hurts himself, as many autistic people do, I feel it.
Thanks very much for the support 🙂
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November 26, 2013 at 1:52 pm
Wow! You are one strong lady. This must be very exhausting at times. Keep writing! You have a talent, and you have such a lovely support here. It is sweet to see all the responses. I wish I could help but I can only send some hugs 🙂
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November 26, 2013 at 4:53 pm
Thank you so much. I appreciate all the support I get. 🙂 You’re so kind.
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November 26, 2013 at 1:46 pm
I think you are doing an incredible job already with your son. My daughter’s autism by contrast is mild but what I have done for her is start an RDSP account for her future. Are you aware of the RDSP assistance that the Canadian government provides for kids with disabilities? Any kind of wage that they earn and can contribute to the account will be matched by the government as a savings for their future. Its just something to look into if you have not made use of this assistance.
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November 26, 2013 at 4:52 pm
I have RDSP’s for both of my handicapped kids. It’s great, isn’t it? Thanks for the comment 🙂
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November 26, 2013 at 5:44 pm
Glad you are already making use of the RDSP. Raising autistic kids is challenging and its great to have any kind of assistance from the government 🙂
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November 26, 2013 at 11:19 am
Nobody knows what tomorrow will bring Linda. We have to be grateful for tender mercies we have today. Though sometimes it’s hard to see the silver lining, we have to stay positive. Writing can be very cathartic as you may well know. Count the blessings you do have…and don’t forget to breathe.
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November 26, 2013 at 4:51 pm
On breathing – you’re preaching to the choir. It’s all that’s kept me sane this long.
Thanks for the support 🙂
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November 27, 2013 at 12:31 am
I commend you! 🙂
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November 27, 2013 at 8:40 am
🙂
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November 26, 2013 at 2:04 am
That is a tough one. I suppose that hole is the reality you face. I have a close friend with an eighteen year old, very strong boy with autism. For many years she has worried about what his future holds. Recently she secured placement for him in sheltered housing. There he will be able to access a level of employment, wage and as independent a life as she could ever have hoped for. Her years of worry came to nothing thank goodness, and I really hope yours do too.
All young boys have rage issues at times, so hopefully as he gets older this will be less of an issue, if you have any house left by then!
For what it’s worth I bet you’re doing an amazing job. Raising any children alone is difficult, take time to acknowledge that you are a cut above most of us.
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November 26, 2013 at 3:38 pm
Nah, I’m not special in the slightest. I just do what I have to do. It’s taken years of practice to get to the level of patience I’m at.
I try not to worry about the future, but it’s difficult not to think about the possibilities.
Thanks, Tric, for the story and the comment. 🙂
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November 25, 2013 at 8:19 pm
I cannot imagine what a single mother with an autistic child must endure but I am sure it is very overwhelming. Possibly he misses his dad since he moved so far away.
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November 26, 2013 at 3:22 pm
I think he does, sometimes, though it’s hard to say. He prefers to spend most of his time alone.
Thanks for the support 🙂
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November 25, 2013 at 7:40 pm
I wish I could offer sane advice. Currently, I am dealing with my 17 year old son who thinks he is gangster thug who goes by the name of Lil Cheezy. I can’t convince him that although he is Cheezy, he is neither thug nor gangster. Keep your chin up. I’m sure you are the best person in his life.
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November 26, 2013 at 3:21 pm
Thanks, my dear. And good luck with the Cheeze.
haha
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November 25, 2013 at 6:37 pm
If I’ve learned anything with my son, then it’s all about taking it one day at a time. Although days such as these are difficult, you’re making it through and so is he. Only the strongest of people can do this (successfully) alone. That says a lot about you.
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November 25, 2013 at 7:30 pm
Thank you. 🙂 It really is one day at a time… as long as it’s not one wall at a time (or window, or computer screen, or digital camera, all of which he’s broken) I’ll be okay. 😛
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November 25, 2013 at 5:47 pm
Hang a painting over it and see if he notices? My friend since elementary school punched a hole in the wall and that’s what they did. Their parents didn’t find out about the hole until all three boys were in college. Could be a good way to “ignore”?
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November 25, 2013 at 7:28 pm
The point is to ignore things like yelling – things that are annoying. If I start ignoring the damage to the house though, I won’t have a house left. 😛
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November 25, 2013 at 7:33 pm
Yeah…I don’t know much about it. But I’m sure a painting would look pretty 😛 Keep up the patience and love!
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November 25, 2013 at 7:35 pm
Thanks, Paul. 🙂
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November 25, 2013 at 5:11 pm
Gee man Linda ~ is about all I can say here. I don’t know what it is like to have a child so dependant and a son without a man to be around…I can only think to say how amazing I think you are to maintain such a positive and vibrant outlook (bad days sometimes I know – but for the most part hey 😉 ) Just stunning.
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November 25, 2013 at 7:27 pm
Thanks very much. As you say, some days it’s hard to stay positive. I appreciate your support. 🙂 Every little bit helps, even from a distance.
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November 25, 2013 at 7:32 pm
It is only a pleasure ~ ;D
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November 25, 2013 at 7:34 pm
🙂
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November 25, 2013 at 3:56 pm
Special Needs children/adults are challenging. My uncle gave my grandmother fits until the day she died. She was single mom after my grandfather died and it was more than she could handle many times. Don’t be afraid to ask for help
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November 25, 2013 at 4:37 pm
I’m not afraid to ask for help, the problem is finding someone to ask. It would be helpful if his dad was close-by, but there’s no use wishing for that.
Thanks for the support 🙂
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November 25, 2013 at 3:53 pm
This must be a very difficult and stressful situation to live with and I admire your strength. Is there any respite care that you can tap in to that will give you some well earned time to yourself? Love Jenna
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November 25, 2013 at 4:34 pm
Thanks, Jenna. There was respite money available before he turned eighteen. Now I’m in the dark. I’m looking into it though.
Thanks for the comment 🙂
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November 25, 2013 at 3:53 pm
Guess with everything, patience is key. Stay strong.
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November 25, 2013 at 4:32 pm
It’s certainly a virtue I can’t do without. Thanks, Charles. 🙂
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November 25, 2013 at 3:26 pm
I’m amazed at the patience and sanity that couples I know with autistic kids are able to keep, so I can’t imagine how hard it is for you to go it mostly alone, especially at his age. Life is hard for boys that age no matter their circumstances, and they need all the help they can get. Best of luck to you.
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November 25, 2013 at 3:28 pm
Thanks, Don. I just do what I can.
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November 25, 2013 at 3:34 pm
Well, that’s all you can do I guess!
How do you deal with the “not knowing?” about the future? That’s what astounds me most about my friends. The kids I know are younger (the oldest one is 13) and none of the parents knows what the future holds?! Will she be able to live alone? Work? Nobody knows and that breaks my heart for them even though they all seem to handle it with aplomb.
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November 25, 2013 at 4:32 pm
Up until they’re older and you can see where they’re heading, what interests them, and what they’re capable of, there’s no telling where they will end up. At this point the best I can hope for my son is assisted living, and possibly a part time menial job, until he moves out, assuming he ever does. I just adopt the ‘wait and see’ attitude and live each day to the fullest. No point worrying about it til it gets here, right?
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