Life in progress


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Language Learning – #AtoZ Challenge

As I’ve mentioned before, it wasn’t long (30 seconds?) after I found out that my baby, Alex, was deaf before I decided I’d need to learn American Sign Language, though I didn’t start taking classes until he reached the age of about two, if memory serves me right. I knew the alphabet and could count to twenty before I started, so I was ahead of the class in these things. The beginner’s class was basic – learn to spell our names, talk about our families, say where we lived, worked, and how we got there and back. Great stuff if you’re an adult. However, that wasn’t why I was going.

During the second level we learned, among other things, relationships, a few different objects, counting to one-hundred and beyond, and professions. So I was learning the sign for “secretary,” while what I really needed was the sign for “squirrel.” There is nothing on earth quite as frustrating as not being able to explain to your toddler what the simplest, most common things are. For instance:

“What’s that?”

“It’s a bird. Wait, let me look it up.”

(Three minutes later) “It was a bird.”

“What was?”

Obviously neither of us had that much of a vocabulary if we didn’t know what, or how to sign what, a bird was, but you get the idea.

Had I known about Baby Sign, I might have taken the classes. But I didn’t. If it was a “thing” in Ottawa in 2002, I didn’t know it. By the time I finally made it to a Baby Sign class, I was at Level 4 in ASL, and Alex knew all the signs they were teaching the parents. It was interesting though. I’ve heard it’s a wonderful tool for parents–if they’re able to teach it to their kids–to understand their baby’s needs before the child is able to form spoken words. I’d be interested to know if anyone out there used Baby Sign, and if so, how it worked out for you.

Why, if I wasn’t learning anything obviously useful, did I go all the way up to Level 4? Because they were teaching me to see. For three hours a week I had to communicate without using my voice. We sometimes played games where we had to get up in front of the class and fingerspell something, and then another of us had to write it on the board. Tests were signed to us and we had to write down our answers. It was crazy difficult, but it was fun. And it gave an appreciation of how focused a Deaf person must be to understand his or her own language. The Canadian Hearing Society had one program I would have liked to have tried, in which they deafened hearing people. Participants would go in first thing in the morning and have silicone put in their ears. Then they would go out into the community–coffee shops, restaurants, stores, services–with someone from CHS to help, and just survive for the day. The rules were no speaking, and no note writing. It was apparently a real eye-opener, so to speak.

Alex and I muddled through those early years of communicating. I felt lucky to have someone to ask questions of once a week if I was really stuck. Youtube wasn’t around until 2005, (yes, believe it or not we survived without Youtube once upon a time!) and typically, computers couldn’t handle the bandwidth of a video anyway, so I was stuck with books with awkward drawings if I had no human to help. There’s really nothing better than having a native speaker in any language to guide a new learner. I’ve watched hearing people who knew no sign try it for the first time – most will do it wrong when shown. As easy as it looks, it’s not.

My A to Z theme concerns the joys and challenges of being the hearing mother of my Deaf son, Alex. To learn more about his beginnings in life, click here to go to my first A to Z entry.


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Deaf vs deaf – #AtoZ Challenge

My A to Z theme concerns the joys and challenges of being the hearing mother of my Deaf son, Alex.

By now, if you’ve been following my A to Z posts, you might have noticed that sometimes I capitalize the word, “deaf,” and sometimes I don’t. It’s not as random as it might at first seem.

Being “deaf” with a small “d” refers to a physical condition. People who go deaf as they age will probably always be “deaf” as opposed to “Deaf.” “Deaf” with a capital “D” refers to someone who is part of the Deaf community. Those born into families who are already part of the community are considered “Deaf” from birth. Think of it like being born English, or African, and you’ll get the picture. Alex was born (or became shortly after birth) deaf. It wasn’t until he learned American Sign Language as his first language that he could be considered Deaf.

As his mother, again I was faced with a huge decision in regards to his deafness. He had an MRI to assess the extent and cause of his hearing loss, and it was determined that he would qualify for a cochlear implant*, which would allow him to hear, somewhat. It wouldn’t have cost me anything – he was deaf enough. I hadn’t realized that there was a chance I would have to pay for it. But that wasn’t my main concern anyway.

By the time he had his MRI, I had started taking formal American Sign Language classes at the Canadian Hearing Society in Ottawa, and he’d already started learning ASL. The Deaf community is tight-knit, with a culture that is unique to them. They tend to protect their culture with a fierceness that equals that of any other culture worldwide, and with reason. It is often misunderstood, as are the Deaf. I’ll get into that discussion on another day, however. My own focus was, of course, on my son, and I needed to decide whether or not he would be Deaf, or remain deaf.

It may seem like an obvious decision at first. I could have had my little hard-of-hearing child to myself, with his cochlear implant, and his tiny fingers that we still weren’t sure would ever be able to sign properly because of his low muscle tone. This last was related to both his Noonan Syndrome and the fact that he had spent eight months in a hospital bed instead of learning to play. Excellent reasoning to have a hearing child.

However, he’d been tube-fed from birth (and still is). On the surface this was completely unrelated, until an occupational therapist explained to me that, because he never learned to suck as an infant, the muscles in his mouth hadn’t developed properly. He would never learn to speak. His dad and I were still undecided when we went to see the surgeon who would perform the operation for the cochlear implant. We felt that it was important to know all the details involved in the procedure, so we could make an informed decision. The moment I heard the words, “five-hour operation,” and “drill a hole in his skull,” I threw up my hands and accepted that I would have a Deaf son. He’d been through enough.

To learn more about Alex’s beginnings in life, click here to go to my letter “A” post.

To learn more about cochlear implants, click here.