Life in progress


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Anxiety in Children

I thought it would be better by now, but it’s just getting worse. My son, Alex, as most of you know, is Deaf, and he hates masks. Anyone dressed in a costume is an extreme cause of stress for him, from the Easter Bunny, to Santa, to his school mascot. I believe it’s mostly because he can’t see their facial expressions, and thus can’t determine whether or not they are friendly or threatening. Whatever it is, Hallowe’en is the worst time of year.

This morning, getting him to go to school to spend the day with his friends was difficult, to say the least. He doesn’t seem to understand that the people he knows are inside the costumes. He’s sixteen years old physically, but at a mental age of six or seven. It’s not likely to get any better from here.

My concern is that I’m perpetuating the problem. Today I drove him to school so I could be there to reassure him everything was okay. He was nervous (he’s been having anxiety attacks every night before bed for the past week) even though he was able to explain to me himself that masks and scary costumes were not permitted at school. So okay, he needs support. I think there’s a fine line between coddling him and reassuring him when his fears are legitimate. But should I be the one supporting him at this point in his life?

I’m not going to be around forever. As he becomes an adult, there will be a time when he can no longer run to Mommy when there’s a problem. I believe he needs to start, at some point, (soon?) to rely on society to feel safe.

I’m at a loss. Any suggestions are welcome.


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Angriest, a #SoCS Rant (with swear words and everything)

There are a few things that annoy me about people, but what gets me angriest is when people get annoyed at my kids. This rant is brought on by a trip to the grocery store earlier today and a woman behind us in line. There isn’t much room once you’ve paid for your groceries and you’re packing your own bags. Alex, my Deaf son, was helping me – I was standing at the end of the belt and he was moving things closer to me while standing in the lane where we came out after paying. There was a woman there with a cart who had just paid for her groceries. All she had was a cart full of cases of pop (soda, for those of you in the U.S.). When I turned, after she had raised her voice (I didn’t know she was there) she was saying to Alex that she just needed to get out, that she didn’t have to pack anything, she would just very much appreciate it if we’d excuse her.

Normally an “excuse me” doesn’t require that much explanation, so it occurred to me that she’d probably been saying it to Alex for a while. He had his back turned to her, so he didn’t know she was there. As she walked away, she looked at me and said, “Thank you very much for moving out of the way.” Waaay over the top, even for a Canadian. So I said, “Sorry he didn’t move right away, he’s Deaf.” Or I tried to say that, but she cut me off: “No, no, no, no, I really appreciate it!”

Fuck you, sarcastic bitch.

I want to say I wish people wouldn’t judge, but I realize I’m judging her. Maybe she’d been having a really hard day? But does she need to take it out on us?

I always say that you can make someone’s day with a smile, no matter who they are. Even if they’re a stranger. You can also ruin someone’s day by being sarcastic and jumping to conclusions. Or rather jumping to conclusions and then being sarcastic.  Or maybe I’m just overreacting because I want to protect my son.

One way or another, be nice out there. And be patient.

socsbadge2016-17

This post is brought to you by Stream of Consciousness Saturday. Check out the rules and join in here: https://lindaghill.com/2016/09/16/the-friday-reminder-and-prompt-for-socs-sept-1716/


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Yielding – #AtoZ Challenge

In my post yesterday, about how difficult it is for my son, Alex, to play with the neighbourhood children, I mentioned that part of his problem is my fault. Thing is, the other kids tend to play from one side of the street to the other and up and down both sides. Kids, being kids, sometimes run across the street to beat the traffic. If Alex follows them but doesn’t see the car, (and of course he doesn’t hear it) the results are literally the stuff of nightmares for me. The traffic on my street should be going at 40km/h (25mph) but occasionally people speed down it as though they were the only ones on the road. On that account I’ve tried to get the city to put up signs, but they refused, saying they deal only with signs that meet provincial standards.

The signs I’ve seen in this province, in various towns and cities, include “Elderly Persons Crossing,” “Children at Play,” “Turtle Crossing,” and “Duck Crossing.” But they won’t put one up for my Deaf son. There are actually a couple of “Deaf Children at Play,” signs across town, but they won’t put one up here. They told me that perhaps they’ve been there since the guidelines were changed.

As parents, we all have to advocate for our kids, whether for their schooling, the services they need, their health… The list goes on. This is just one of the many I have to deal with. I need to find help, I think.

What have you advocated for on your family’s behalf and succeeded?


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X-Exclusion – #AtoZ Challenge

One of the hardest things for me to endure, as the mother of a Deaf child, is the exclusion of Alex by the hearing neighbourhood kids. Admittedly, part of it is my fault. Explaining why would be going off on a tangent, however, so I’ll leave that for tomorrow’s post.

Alex does have friends at school, but they live all over the province. Some are in residence on campus, many live miles away. So it’s difficult for him to get together with them outside of school. But like any kid, he sees children his own age outside his own house playing and he wants to join in. There are a couple who will play with him as long as their friends aren’t around – understandable in a way, since once they start discussing what they’re going to do, it’s hard to include Alex in the conversation. But even when they’re alone with Alex, they eventually get frustrated with trying to communicate with him. So they stop playing.

Then there are the kids across the street. He went over to play with them once, but they had no tolerance for him. They complained to one of Alex’s friends that does play with him that he “gives them a headache.” I wonder where they got that phrase from. It’s not often you see a perfectly healthy 7 or 10 year old child with an actual headache. Since that one time, they’ve sent him away and left me to explain to him that they don’t want to play with him. Or worse, they’ve let him stay and made fun of him, thinking he can’t understand. As I’ve mentioned before, most of sign language is body language and facial expression. He understands just fine. Incredibly, I’ve even had one of them accuse him of hitting her so she could use the excuse that he was mean to her. She figured, I suppose, that he would be unable to explain to me what really happened.

It doesn’t seem to matter how much we teach our children tolerance (though the kids and their parents across the street could use a lot more), they will be kids. They have their own interests, which don’t always include being able to play with only minimal communication. It’s a tough issue. One I can’t see a solution for.


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Windows – #AtoZ Challenge

Windows are wonderful, aren’t they? They keep us warm (or cool, depending on the season), and allow us at the same time to gaze upon the scenery outside. Through them we can watch our kids play… But windows are not that great when we want to say something through them, like, “Stop squirming already and come in for a pee!” Unless we know sign language!

I remember once driving up to a stop sign and seeing, half way up the street, my eldest son walking in the freezing cold.

“Where are you going?” I asked.

“The mall,” he replied.

“Want a ride?”

“Sure, thanks.”

All from outside of yelling distance, and I didn’t have to roll the window down. Same thing when the kids had a play date in one of those huge indoor playgrounds. It didn’t matter that they were climbing through a kid-sized tube high above the floor and I was waiting for them to come down.

As soon as they looked at me, I signed, “Come down in 10 minutes for lunch.”

“What are we having?”

“Pizza.”

“I’ll be right there.”

Amazing, eh?

Problem was, it became a habit for me. One time that was particularly embarrassing, was when the father of one of my kids’ friends brought my son home. The dad didn’t get out of the car, he just let my son out and waved. Being the polite person I am, I signed “thank you.” He never spoke to me again. To this day I believe he thought I was blowing him a kiss.

Conclusion: sign language is a fantastic way to communicate, as long as everyone knows what you’re doing.


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Vibration – #AtoZ Challenge

Apart from heightened visual observational skills, my Deaf son, Alex, is extremely sensitive to vibration. Often, when I’m trying to get his attention I’ll stomp on the floor. Even across the room whilst wearing shoes, he can feel my attention-grabbing technique – unless he’s trying to ignore me, which leaves me jumping up and down in frustration like a mad-woman. I swear, if I had a camera in my house… Of course this only works on a wooden floor. If we’re on concrete or outside I have to make sure he can see me.

This sensitivity also accounts for his terror of thunderstorms. He doesn’t need to hear the crash, he can feel it. Coupled with the flash of lightning, it’s rare for him to sleep while there’s a storm going on.

I couldn’t find the interview that Ellen did with Marlee Matlin when she was on “Dancing With The Stars,” but here’s the interview with Nyle DiMarco and his partner, where Ellen mentions how Ms. Matlin danced by feel.

https://widgets.ellentube.com/videos/0-mylh1u42/

My A to Z theme concerns the joys and challenges of being the hearing mother of my Deaf son, Alex. To learn more about his beginnings in life, click here to go to my first A to Z entry.


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Understanding – #AtoZ Challenge

You know when your toddler learned a new word a few days ago and then tries to say it again, but can’t quite pronounce it? Even though you ask him or her to repeat it, a lot of the time you still can’t figure out what he or she is trying to say, right? It’s like that for me every single day.

The Deaf school that my son, Alex, attends is a godsend in many ways. But he comes home with a heightened vocabulary that I just can’t comprehend. And it’s not as though I can look it up. I can find words I want to sign because I know how they are spelt. But finding a sign in the dictionary when you don’t know what the sign is, is like trying to figure out what written Chinese means.

So Alex dumbs it down for me. For instance, he was trying to explain to me the other day that his friend had invited him over to his place to play. But I didn’t know the sign “invited.” I got the friend’s name, (which is a task all on its own, because names are invented by Deaf people on a person to person basis) and I got the sign for “go” and “house.” While I was trying to tell Alex he couldn’t go, he was signing, “I was invited.” Seeing that Mom wasn’t understanding him, yet again, he went the long way around.

Alex: [Friend’s] mom talked to [friend], told me fine, [friend] asked me to go to his house.

Me: [Friend’s] mom said okay you go?

Alex: Yes.

It’s like living with a game of charades.

My A to Z theme concerns the joys and challenges of being the hearing mother of my Deaf son, Alex. To learn more about his beginnings in life, click here to go to my first A to Z entry.