I had no idea that it was a ‘thing,’ but apparently, with senile dementia comes paranoia. As my mother ages I’m thinking more and more that I need to research the stages, before she goes through them.
Last night she told be that she had been talking to her sister, six years her senior, on the phone and that her sister is losing her mind. My mother loves to complain about anything, but when it comes to her siblings, nothing has ever been more delightful to her than being superior to them. Being an only child I can only assume that this is a result of early childhood bullying, or simply being told what to do, since my mother is the youngest of five.
Anyway, she was gleefully informing me about how her sister had related the same thing story times in the space of five minutes, and then the subject of my mother’s apartment came up. To backtrack a bit, before my mom moved to town, I lived in her apartment since I hadn’t found a place of my own. Her apartment came available on the market, so I bought it. Then when her old house sold, she bought my house and I moved out of her apartment the day she moved in. Confused yet? Just keep going.
She forgets that she came to visit me when I lived in her apartment. She swears up and down that she never saw the place before the day she moved in. When I tried to remind her last night, she not only denied it, she told me that I was the one who was losing my mind, not her – she’s obviously worried about it even if she won’t admit it.
What really got under my skin, and is worrying me, is that she accused me of saying she saw her apartment before she moved in just to make her think she is going crazy – like I’m doing it maliciously.
I’m getting close to the point where I’m going to have to move her into a place where she can have assisted living. Not a nursing home, necessarily, but a retirement home at least. She wants to move in with me, but I just can’t handle it. My children have to come first, as well as my own health. She is just too much work.
I’m just afraid if I wait too much longer, she’ll think I hate her. This paranoia thing is really scary.
November 3, 2013 at 7:40 am
paranoia is a scary ting Linda, you have so much on your plate , you do not need more. paranoia spreads like wild fire. Get some help for her don’t worry about what she may accuse you of just remember she is not quite the person she was.You have enough to cope with , who will look after everyone if you break down. Bite the bullet get help to find her a nice safe haven , then think of yourself a little . Hugs!!
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November 3, 2013 at 1:34 am
Oh, Linda, I wish I had some good advice for you. Actually I think some of the commenters have left you far better counsel than I ever could. It feels like a no-win situation. If you find the absolute best place for her, she might still hate you for it because she can’t reason. Of course, if she could reason, you wouldn’t have this worry. You can only do what is best for her and for yourself (as in not having her come to live with you). Big hug!
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November 2, 2013 at 7:26 am
There are some great places here in Canada. After my father died my mother moved into a retirement residence. After five years she needed more care and so went into a long-term care facility a.k.a. nursing home. The important thing is to do research on the facilities. And also visit them and ask questions, lots and lots of questions. There are some great places out there. I still visit my mother’s retirement residence even know she’s been gone for a while. I wish you the best of luck.
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November 2, 2013 at 11:21 am
I have been looking around, but I also need to find out how selling her house and moving into one of these places is going to affect her pensions. Most of them are very expensive!
Thanks very much. I appreciate your input and your support 🙂
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November 2, 2013 at 2:43 am
Sorry for that Linda. More strength to you.
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November 2, 2013 at 11:19 am
Thanks for your support, Subh. 🙂
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November 1, 2013 at 7:27 pm
Linda – so sorry to hear you are going through this. My dad is in hospice, late-stage dementia. I would say getting her into a home that specializes in memory care/dementia is key. My dad had to go to the hospital a couple of times and then to a rehabilitation place and the rehab place had a lot of people who didn’t know how to deal with the dementia. I think the horror stories we often here are because the places don’t specialize in dementia/memory care and so their staff is unfamiliar with what to expect and how to deal with it. My dad is at home with a 24 hour caregiver now – he’s lost the ability to communicate and is bed-bound. It is really hard to see and even more difficult on my mom, who is at home as well. But, it really has made a huge difference having a caregiver who is used to dementia and knows what to expect (agitation, sun-downing, etc.). I hope this isn’t sounding preachy – I just wish we would have sought out specialized care earlier in the process. Will keep you in my thoughts!
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November 1, 2013 at 10:18 pm
Thanks very much for that, and no, it doesn’t sound preachy at all. Any advice is well appreciated.
You’re not the first to tell me it’s best not to wait. Broaching the subject is going to be tough though. I’m all she has (her sisters are in the U.K. and we’re in Canada) and for me to make her feel as though I don’t want her will be devastating. Not something I can avoid forever though…
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November 1, 2013 at 6:21 pm
Hi Linda,
My Mum is now in late stage alzheimer’s, and she started with a diagnosis of vascular dementia nine years ago. I really feel for you. Looking back, the early signs and events are always so worrisome and difficult. What I know now is there is no sense trying to argue with someone who has lost their reason. Their reality is so real to them, as real as the truth is to us. All the best, hugs.
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November 1, 2013 at 6:31 pm
I’m learning that too, slowly but surely. It’s very hard to watch.
Thanks very much for the comment, the follow, and the hugs. 🙂
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November 1, 2013 at 6:20 pm
this is anecdotal, but my mom is going through something similar with my grandma — she’s in an assisted living facility. Her dementia is pretty bad, but no signs of paranoia — but yeah, they’re both frightening. I assume you sat down with her and said, mom, why would I want to make you think you’re crazy?
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November 1, 2013 at 6:23 pm
Actually I just stopped talking. Along with everything else, her ability to reason and her sense of logic has started to decline as well.
I suppose it happens to us all, to some extent or another, if we make it into our eighties.
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November 1, 2013 at 6:58 pm
hmm 😦
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November 1, 2013 at 7:06 pm
Dementia is ‘global’ – meaning, like mental retardation is a ‘global delay’, dementia takes all of the cognitive skills and turns them to mush. It slowly begins to effect everything, to the point that the person will revert back to childlike behaviour… except with the life experiences they have behind them that they can still remember. It’s scary and sad to watch.
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November 1, 2013 at 4:02 pm
I wasn’t aware of the paranoia element either. It is such a difficult situation to be involved in but the assisted living, at least here in Ireland, is very good, they have independence and yet have trained professionals on hand if they are needed.
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November 1, 2013 at 4:36 pm
I’m hoping to be able to find such a place here in Canada, though there have been some horror stories on the news of late. One thing I hope my mother does forget is that.
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November 1, 2013 at 3:49 pm
This being the parent to a parent is so difficult. I’m sorry you have to go through this
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November 1, 2013 at 4:33 pm
Thanks Pamela. We all have our unique challenges, don’t we?
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November 1, 2013 at 3:36 pm
I do not envy this journey you are on with your mother, Linda. Hang in there, find the good moments to cherish, forgive her when you can and must. I lost both my parents to heart attacks in their mid-60s. Not good, either, to say the least.
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November 1, 2013 at 4:32 pm
Thanks for the encouraging words. My father died at 49 of a heart attack and my mom is now 83. I suppose you could say I’m getting the whole experience… 😛
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