Linda G. Hill

Life in progress

Nighttime Variations – #AtoZ Challenge

22 Comments

Nighttime is much different with a Deaf child than it is with a hearing one. Just how much, I wasn’t able to imagine until I experienced it. When I had my first two kids I quickly learned what their cries meant. I knew whether or not they needed my full or immediate attention, or if they were just whining for a bit of company in the middle of the night. In the case of the latter, I would call out to let them know I was right in the room next door, and that they weren’t completely alone. With Alex, of course, this wasn’t and still is not, an option, even though he’s fifteen years old. So whenever he calls, no matter what the reason, either I have to get up or he comes to me.

The next difficulty: signing in the dark. People who are both deaf and blind learn to sign while touching, but try as I might, I can’t convince Alex to attempt it. So on go the lights which, in the dead of night, blinds us both. And speaking of lights…

They are one of the two things that will wake him up when he’s fast asleep, the other being vibration. I can go into his room and talk normally with no problem, which has been great at times when he’s been in the hospital. The neighbours can party all night long, fans can rattle, his feeding pump can beep, the phone can ring – none of that disturbs him in the least. But if I touch his bed or shine my cell phone in the wrong direction because I’m looking for something, and he’s wide awake. For anyone babysitting, it takes a bit of getting used to. As it will for me, if I ever look after someone else’s child.

My A to Z theme concerns the joys and challenges of being the hearing mother of my Deaf son, Alex. To learn more about his beginnings in life, click here to go to my first A to Z entry.

Author: LindaGHill

There's a writer in here, clawing her way out.

22 thoughts on “Nighttime Variations – #AtoZ Challenge

  1. Pingback: April A-Z Challenge: Meet & Greet | A Texan's View of Upstate New York

  2. I hate having to turn on the lights in the middle of the night. I listen to white noise at night (helps with tinnitus) and the small speaker I use has a rather bright LED in it, and that’s usually enough light. I also keep a small flashlight by the bed in the event I need more light. Would a night light disrupt his sleep? I think you’ve already worked things out, though…

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  3. I’d never thought about that. It’s good to know that love, communication, patience and understanding are the key. How do his brothers cope? Do you ‘show’ them, or do they figure it out for themselves?

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  4. Interesting Linda.

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  5. Things that so many take for granted and we don’t even think about things like lights and vibrations. I’m enjoying your A to Z Challenge posts. http://themarthareview.com/n-is-for-never-forget/

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    • I used to take them for granted too. 🙂 I can’t tell you how many times I’ve mentioned to nurses at the hospital that they didn’t have to whisper, just not to touch the bed if they didn’t have to. 😛
      Thanks so much, Martha. Glad you’re enjoying it. 🙂

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  6. An excellent peek into your world – one with many more challenges than many must give you credit for.
    Great theme for the A to Z challenge!
    Trisha Faye
    http://www.embracinglifetribe.wordpress.com

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  7. This is all so interesting. Some of these things so easy to understand, but I would have never thought of them. Thank you for sharing your personal experience with us Linda.

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  8. I can’t imagine how you have dealt with a child like Alex but then again people used to say that about me and my six…I used to say as I’m sure you have on occasion: “Well you don’t have to cope so its not your problem”. And we do and it becomes part of our everyday its later when you look back and scratch your head as I do often wondering how I actually did do it all….but we do because it is our life……I am full of admiration and in awe of you Linda doing what you do I am sure there are many rewarding moments in each day mixed in with the frustrating ones…..

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    • That’s it. You just do what you have to. I’m actually a bit amazed already at the things I do – writing them down has put my daily life into a perspective that I don’t see without the analysis of it. Not necessarily the harder parts of it, but … it’s like if you wrote down all the steps of what you do to get into a car, start it, and drive it. You do them without thinking, and that’s what I’m now seeing. You know?
      Thanks so much for your kind words, Michael. And yes, the joy more than makes up for the frustrations of it all. 🙂

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      • That’s a really good way of putting it Linda, we do what we do without thinking…..I know that now when I go to my daughters with her three little boys and look at how they are and running everywhere I wonder what i did do with my own to stay sane, or maybe I just let sanity go by me……the beauty of it all now is they are grown and wonderful people in their own ways and we have adult relationships which I do enjoy…..

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