Life in progress

Tag Archives: Autism


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Constant

Never a dull moment, they say. And here, in my life, it’s true.

I just walked into the room which houses my main household computer to find a hole in the wall. My autistic son has learned not to put his fist through the window, it seems. That was so two years ago. And now there is one more thing to add to the list of repairs on my house.

We’ve been through the behavioural training. I’ve been told over and over again to ignore the behaviour I don’t like and pay attention and praise the behaviour I wish to continue. But I can’t be with him all the time. This is what happens, apparently, when I ignore the yelling. Most of the time it actually works. Once in a while, I pay the consequences.

It’s an ongoing struggle. I’m sad to think that I might not always be able to take care of him on my own, but it’s a fact I have to face. He needs the influence of a man in his life – he’s eighteen years old. I don’t have one for him, and his father not only lives elsewhere, but that elsewhere is now hours away instead of across town where he lived up until this summer.

Sometimes I feel like I do nothing. I can spend hours some days, just writing. Other days I’m completely overwhelmed. Least of all is the stress of not knowing what’s coming next.

Such is life with an autistic child…. adult.


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It’s Official

As of today, two of my children are adults. My middle son turned 18 today.

It’s really strange for me. I know I’ve said it before, but I’m in a unique position. I can watch him shave his face, reach up to hug him because he’s so much taller than I am, and yet I bought him Lego to unwrap today – the contradiction being because he is severely autistic.

I feel sad that he isn’t like his older brother – thinking about moving in with his girlfriend. I don’t know that he’ll ever have one.  But at the same time I am, very very slightly, content that for a while longer I will be able to watch over him.

A very happy birthday to you, Chris.

Chris

I love you very much.


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My Three ‘Only’ Children

The dynamic that makes up my family is so unique that I don’t imagine there is even a statistic out there which would cover it. Since this is the case, I will describe it so that you can imagine.

Having grown up an only child, I always said that I would have more than one, so that my children would have a sibling to play with. So I gave birth to one beautiful little boy and then another, 14 short months later. When my second turned four years old, things became complicated. He was diagnosed with autism. After months of therapy and learning to read, he finally began speaking. Yes, reading taught him to speak. But being autistic meant lining up toy cars all the way around the dining room table, not playing with his older brother. To this day, he prefers to be alone all the time, and rarely interacts with us.

Then came the decision to have another child. Although there was going to be five or six years difference, at least when they were older my first child and my third would be able to get along perhaps. My third son was born Deaf, however. Imagine it. Having someone in your family, who you gave birth to, who speaks a different language.

Yes, we have all learned to sign. But there is no doubt that my youngest son is most at home with people who can not only speak his language fluently, but who can teach him what it truly means to be a Deaf person in a hearing world.

So there you have it. My family consists of three children who essentially have lives which are fundamentally different from each other’s.

Nothing in life is guaranteed, and anything is possible.