Life in progress

Tag Archives: tube feeding


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The Young and the Rested

I was inspired by the Daily Prompt here: https://dailypost.wordpress.com/dp_prompt/the-young-and-the-rested/ not as much by the actual prompt —

“When was the last time you felt truly rejuvenated and energized? What made you feel that way?”

–but by the title of it. The Young and the Rested.

The fact is, I’ve been at home with the young’uns for the last two weeks of the summer without much of a break. Consider my challenges: Sunday dawned bright and early and Alex, my youngest, wanted to go on a bus ride with his brother. First he had to feed, a process which takes about two hours via feeding pump. So we were sitting around the table, Alex and I and my BFF John, playing a rousing game of Life (the board game) while he fed, when Alex decided it was time for his brother to wake up. I said no, they couldn’t leave for another hour, let him sleep a bit more. Unplug me from my pump, Alex demanded. I don’t want to eat anymore, I want to go now. This was not an option; he turned the pump off anyway. I told him that if he wanted to continue to play his game he had to feed. No way, he said. So I walked away.

He proceeded to follow me around the house, digging his fingers into me to get my attention whilst screaming. Fine, I said, stop screaming and poking me or go to your room.

Okay, I’ll go to my room, he said. With the pump off (still) he went to his room. After a while I told him he could come out if he would turn on his pump. No way, he said. I want to go on the bus, to which I replied, You’re not going on the bus until your feed is finished.

The argument began at 9:30 am. It finished when I finally force-fed him by syringe at 1pm. The consequence, no bus.

This is a typical day for me at home with Alex. He gets something into his head that he wants to do and he will absolutely not consider the consequences of his actions. He’s an adolescent still going through his terrible twos. It takes him hours to give in – and I’m consistent! And as patient as anyone I have ever met. Of course there is the language barrier – he is Deaf and I am hearing. Although my sign language is limited, I still have to believe that after almost 15 years of living together I can at least get my point across on the most basic level.

He’s also sick with that awful summer cold that’s going around, which is really where all this ties in with the prompt. Last night he woke up coughing at 1:40 am. I gave him something that I thought might help (doctor prescribed codeine) but it didn’t. At 4 am I finally gave in and let him watch a movie in bed. So neither of us are rested… and I’m old.

When was the last time I felt truly rejuvenated and energized? The early nineties. Before I started having kids. Parenting is such fun, isn’t it?


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Starving my child for kicks

I had the pleasure today of going out for lunch with my son, Alex. For those of you who are new to this blog, Alex is Deaf and he is tube-fed. He nibbles a little, drinks even less, and has never eaten a meal in all of his thirteen and three-quarter years. However it’s fun for both of us: I get to treat myself to a meal and he gets to people-watch, which is his favourite thing in the whole world.

So we went into Montana’s and sat down in a booth and the waitress came over to ask if we wanted anything to drink. I ordered him a glass of water without ice (I’m won’t pay for something he won’t drink – he did end up sipping about a half-teaspoon of it though) and I ordered myself a beer. A few minutes later she came back with that and took our order. We had agreed on a salmon salad – Alex liked the picture – so I asked for it and he pointed to it.

“Just one?” she asked.

“Yes,” I answered.

“Shall I get him a plate?” she half-whispered, I suppose so as not to embarrass me.

“Sure,” I said.

She looked at me briefly as though she was assessing how cheap I must be and left the table. Five minutes later she came back with not one, but two small plates. I mean seriously, SURELY I was going to split the salad evenly. I did manage to not tell her to go fuck herself however – I said thank you instead.

When the salad came she put it in the middle of the table. Of course I immediately moved it in front of me and gave Alex a nibble on his plate. After two miniscule bites of salmon he was full.

The thing is this: every time this happens I’m tempted to lift up his shirt and show the waitress his g-tube button, permanently implanted in his stomach, and explain why I’m not feeding him. But then I think, why should I have to? What I do in a restaurant, as long as I’m being polite and paying for my food, shouldn’t matter. Yet how much do you want to bet she went home and told her husband, “There was this woman who came in today and ordered herself a beer and a salad and let her kid starve, blah blah blah…” Actually, it’s kind of funny, when you think about it.

Would you explain to people why you’re not feeding your child? Or would you just allow them to judge and tell everyone about it who will listen?


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Just Jot it July – Busyness

On Monday, Alex started camp, and silly me, I thought that meant I’d have time to myself this week.

Monday morning started at 4am, with a very excited camper. Most of my day was lost having a nap.

Tuesday wake-up time was better, but I still had to go to camp to feed him, since it’s not “allowed” at YMCA day camps for the employees to “do anything like giving kids medicine, etc.” …which apparently lumps in feeding my kid because he’s tube fed. … It’s FEEDING! You’re not going to overdose him! After that, I had to go and meet a real estate agent at my mother’s condo. I’m trying to sell it since she’s in a retirement home. The good news? I may be able to get $1,000 more for it now than I bought it for five years ago. (Yes, I own it. Long story.) (And yes, that’s only three zeros.)

Tomorrow, Alex’s brother, Fred, is going to feed him, but I have to go in the morning to bottle my white wine (at this point I’m thinking maybe that should be whine) (unless my dear dear best friend does it for me *bats eyelashes*) and then I’m picking up mom for a trip to the bank and the doctor. Woohoo! Fun times.

THURSDAY, I have 124 papers to deliver in the morning, then take a nice hour long drive to feed Alex because they’re going on a field trip that day, and an hour back home. To the same city I’m going to for my vacation on Friday. Because I needed to drive there twice.

But the bestest news is, I’m on vacation next week!! Four days and three nights in Kingston to do research/get inspired for my novels (I can say novels with a plural now, because I’m almost 8,000 words into the sequel) and then a week at home all by my lonesome. Isn’t that awesome??

Now all I have to do is get through the next couple of days.

P.S. For all you SoCS participants, I’ll be posting the prompt early Friday and scheduling my own Saturday SoCS post but I won’t be online for the weekend. More about that on Friday.

P.P.S. If you’d like to join in Miss Lou’s Just Jot it July, go here to find the rules: http://misslouella.wordpress.com/2014/07/07/just-jot-it-july/


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Post-Hallowe’en Indulgence

I have a love/hate relationship with Hallowe’en.

I’m in a unique, somewhat unenviable position of having a child who enjoys trick-or-treating but doesn’t eat – all of his meals are administered through a tube. So while he’s at school, I must either hide the candy or eat it.

indulgence

Though I do my best to resist temptation while indulging in my second love (after my kids) of writing, as they say, resistance is futile. After all, what better way to pass the time whilst NaNoing than eat sweets?

Thank goodness for running around the mall doing Christmas shopping in December, eh?