Life in progress

Starving my child for kicks

92 Comments

I had the pleasure today of going out for lunch with my son, Alex. For those of you who are new to this blog, Alex is Deaf and he is tube-fed. He nibbles a little, drinks even less, and has never eaten a meal in all of his thirteen and three-quarter years. However it’s fun for both of us: I get to treat myself to a meal and he gets to people-watch, which is his favourite thing in the whole world.

So we went into Montana’s and sat down in a booth and the waitress came over to ask if we wanted anything to drink. I ordered him a glass of water without ice (I’m won’t pay for something he won’t drink – he did end up sipping about a half-teaspoon of it though) and I ordered myself a beer. A few minutes later she came back with that and took our order. We had agreed on a salmon salad – Alex liked the picture – so I asked for it and he pointed to it.

“Just one?” she asked.

“Yes,” I answered.

“Shall I get him a plate?” she half-whispered, I suppose so as not to embarrass me.

“Sure,” I said.

She looked at me briefly as though she was assessing how cheap I must be and left the table. Five minutes later she came back with not one, but two small plates. I mean seriously, SURELY I was going to split the salad evenly. I did manage to not tell her to go fuck herself however – I said thank you instead.

When the salad came she put it in the middle of the table. Of course I immediately moved it in front of me and gave Alex a nibble on his plate. After two miniscule bites of salmon he was full.

The thing is this: every time this happens I’m tempted to lift up his shirt and show the waitress his g-tube button, permanently implanted in his stomach, and explain why I’m not feeding him. But then I think, why should I have to? What I do in a restaurant, as long as I’m being polite and paying for my food, shouldn’t matter. Yet how much do you want to bet she went home and told her husband, “There was this woman who came in today and ordered herself a beer and a salad and let her kid starve, blah blah blah…” Actually, it’s kind of funny, when you think about it.

Would you explain to people why you’re not feeding your child? Or would you just allow them to judge and tell everyone about it who will listen?

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Author: Linda G. Hill

There's a writer in here, clawing her way out.

92 thoughts on “Starving my child for kicks

  1. cordeliasmom2012's avatar

    I think you handled it just right when you told the waitress she could bring a second plate. Honestly- as long as the child is not screaming, “Mommy, I’m HUUUUUUUNGRY – give me some!” or something to that effect (while Mommy laughingly holds a spoonful of food just out of his reach), I don’t think it’s anyone’s business. Some kids just decide they don’t want to eat whatever’s there, and you have no obligation to explain anything to anyone.

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  2. shanjeniah's avatar

    Maybe you could say something like, “He’s already eaten; he’d just like a taste,” which would be true without giving information a server has no real right to.

    When I was a waittress, I would have accepted that, and I also understood that there are disabilities we can’t easily see. If your son was happy with his sips of water, nibbles of salmon, if he’s obviously not at the edge of starvation, and he was comfortably engaged during the meal, it would be rather hard to make the leap to a mother starving her boy.

    Still, it is unusual to many people, and, if they can’t see the button, or don’t know what it’s for, they may have questions they feel are rude to ask. “He’s on mostly a liquid diet,” might work, or asking him, in sign and aloud, “Is this enough?” then nodding.

    It seems what you need is an explanation that stills the wondering, maybe accusatory looks without sacrificing your son’s right to privacy as regards his eating habits.

    May you find the balance, and enjoy many more happy meals together!

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    • Linda G. Hill's avatar

      Thank you! 🙂 Great suggestions. I do like to keep his privacy intact, which is one of my reasons for not wanting to explain.

      Liked by 1 person

      • shanjeniah's avatar

        I’m thinking you could tailor the response depending on the attitude of the server. If it seems like honest concern, a bit of information might help ease a mind.

        But some people are intrusive, or judgmental for the sake of being so. If you decided on the meal together, and were enjoying one another’s company, as it sounds like you were, I’m thinking it would be a pretty big stretch to assume you’re willfully starving him.

        I just thought that having a “regular” restaurant or two might help, if you don’t. People would get to know you both, see you together, enough to know you aren’t mistreating your son, and, if they’re at all perceptive, to maybe come to understand that he has differences as far as diet is concerned, even if they never know about the tube feeding.

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        • Linda G. Hill's avatar

          Very true and a good suggestion – there’s a small family restaurant down the street. Maybe we should stick to going there – though sometimes the patrons can be worse than the staff. 😛

          Liked by 1 person

          • shanjeniah's avatar

            Sometimes, people are just going to be difficult. But having a regular place might help, and maybe, if this is a family place, he won’t be the only person who doesn’t eat in a traditional manner.

            Years ago, when the kids were still small enough to enjoy reading times and Borders still existed, a little girl used to come who was tube-fed. I only knew this because she had a pump, and often ate during the event. I don’t think her mom and I ever talked about it, but now I wonder if she faced a situation like yours….

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            • Linda G. Hill's avatar

              Oh probably. It’s quite common among parents of special needs kids to face ignorance in people, unfortunately.

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              • shanjeniah's avatar

                Sometimes, homechoolers get it, too. Not in the same way, but I have been told that “not letting them go to school is child abuse”. Which, by the way, is absurd, because, if either of them wanted to go to school, they could. The bus goes right past our house, and these kids are not prisoners. We’d register them if that’s what they wanted, and one or both might, at some point.

                I even ask them every now and then if they want to keep doing what we’re doing. That’s when they look at me as though I suddenly became a cyclops… =)

                In the end, some people seem determined to be ignorant. That’s okay; you know what you’re doing and why. Hugs – and if we ever have a meal together with your son, I will not bat an eyelash at what he does or doesn’t eat! =)

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  3. jetgirlcos's avatar

    interesting post…first of all, I think you are a great mom! I don’t have kids, so I’m trying to imagine what I might have done/said if I were in the waitress’ shoes…and I’m not sure. I think I probably would have just assumed that Alex ate at home, I would have thought maybe he was a picky eater or something. But since he was clearly happy and not causing a ruckus, I probably wouldn’t have thought much about it. Would I have offered an extra plate? Probably, just because I’ve gone out with enough of my friends who have kids to know that they often don’t eat enough to warrant ordering a second meal and so often share with their parents. I guess I don’t see that as odd…anyway, I don’t think you should feel obligated to explain anything to anyone. I’m glad that two of you had a good time.

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    • Linda G. Hill's avatar

      Thank you very much. 🙂 It wasn’t the first plate she brought that I had as much as the implication the second plate made – that I needed two meals but could only be bothered to pay for one. I don’t know – maybe I’m just being too sensitive. You go through something enough times though, ya know? 😛

      Liked by 1 person

  4. A Muslim Latina's avatar

    You have a lot of courage and confidence most won’t. Of course you don’t need to explain anyone your situation and if you and your son enjoy your outing who cares what people might think or say. 🙂 you seem to be like a wonderful mother 🙂

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  5. Mickey's avatar

    If that server thought you were guilty of child neglect, she would have called the authorities–and been embarrassed when the investigation established that you were doing nothing wrong. If she didn’t, then it was none of her business. People who sit in the middle and just gossip irritate me as much as they appear to irritate you.

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  6. Timiarah Camburn's avatar

    You have such a way of explaining your stories with wit and creativity. I bet you get tired of restaurant follies, but thank you for sharing them with us. I nominated you for the Very Inspiring Blogger Award. I find your blog inspiring. If you would like to accept this nomination, you can read a bit more about it on my blog.

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  7. willowdot21's avatar

    I just don’t know what to say Linda this happens to you so often I am amazed that you have not lost your cool yet! Maybe you could carry a set of cards explaining like in the Bob Dylan song ! Along the lines of! ” Hey Dimbo, yes you staring at me” This is my son he cannot eat any real amount of food” “Feeding tube…yes ! FEEDING TUBE ” “OH! F##K off he likes people watching and I like to get out ” “People watching yes, bit like you but much more polite and lovable”……and finally “OKAY YOU WIN I LIKE TO WATCH HIM SUFFER” You catch my drift, it is no ones business but yours and Alex’s they are the rude ones with the problem! xxx

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  8. Joanne Corey's avatar

    I admire the way you are able to be out and about with your children despite their health challenges. You did ask, though, what others would do in a similar situation, and I would probably give a short, matter-of-fact explanation when ordering, such as, “My son uses a feeding tube, but enjoys sharing a few bites of my meal. Could you please bring him a small plate?”

    Liked by 1 person

    • Linda G. Hill's avatar

      Thanks for your input and your kind words, Joanne. 🙂 I have, in fact, told people that he’s tube fed before, and had anything from a cold stare and subsequently being ignored (it might be catching, after all) to genuine understanding. I tend only to tell people who seem to be open to an explanation though, rather than the ones who judge right off the bat.

      Liked by 1 person

  9. Corner of Confessions's avatar

    Working retail, I have seen so much bad parenting or just general neglect. The parents are so absorbed in looking at clothes they don’t even supervise their children who often run away , even different floors. It astounds me. Just yesterday a mother was trying on shoes and a young child wandered ( he wasnt far from the shoe section but still to a child who couldn’t visibly see their relatives…) he started crying and then saw a security guard down the aisle who was walking into a stock room and the child ran full speed at the security guard and into the stock room. I stumbled into the situation when security found the mother and the mother was yelling at the kid “why are you crying?! You shouldn’t be crying! It’s your fault for not staying by my side!” We were like really???? A young child gets antsy is only natural when you’ve been trying on shoes for the past half hour and then does the right thing to run to a security official and is upset about being separated and your blaming the child for your lack of supervision. She didn’t even seek him out, security found her cause the boy told them mommie was putting on shoes.

    I guess i prefer judgement , cause at-least it symbolizes people still care. I would be more concerned for general obliviousness. I understand its frustrating, my niece has cerebral palsy and she has serious tantrums in public and screams bloody murder and I actually prefer to have strangers approach us and ask if everything is all right. I guess i find comfort in knowing strangers are still willing to get involved if they see something, even if its judgmental and assumptive. Growing up in new york, i’ve seen alot of serious situations and people just dont want to get involved so when it involves a child, even if its rude or preemptive I kind of appreciate it.

    Liked by 1 person

    • Linda G. Hill's avatar

      I do agree to an extent. Yes, if the child is in obvious distress then I would be tempted to say something myself. There is nothing worse, in my eyes, than an abused child. But having said that, I have children with behaviour issues and I know that sometimes I appear to be the bad guy myself. On the few occasions when I’ve had to drag Alex kicking, screaming, hitting and biting me out of the mall, I’ve had people look at me with a concerned expression. I believe they’ve never actually said anything to me however, since I am completely calm through his tantrums. I smile at them, ready to explain – they never ask. I’m clearly not abusing him, I’m only removing him.
      In the case of the restaurant, he was happy, engaging, open and content – and it showed. I was interacting with him and not ignoring him. So why the judgement? I can only conclude that the waitress simply didn’t care to try to understand.

      Liked by 1 person

  10. tric's avatar

    How awkward, but I do think that on some occasions I would find it highly amusing, and I might even fuel the fire. However on the reality scale, I think it must be difficult as people will judge and not knowing you may misjudge.

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    • Linda G. Hill's avatar

      I’d be willing to say most people misjudge me for so many different reasons, but none more for Alex’s way of doing things. I’ve gotten so used to it though that I do find it amusing most of the time. 🙂

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  11. theed's avatar

    Actually, I think there are 2 sides to this story. Yours, (which was nice to read) and the fact that there are indeed ‘parents’ who treat their children exactly as you have described but for malicious or mental health reasons. Folks only find out when the child has been starved to a skeletal corpse and then wonder why no one intervened.

    Clearly not everyone who might be concerned would know what to look for and are not in a position to assess whether the child is being treated badly as these kinds of cases wouldn’t happen so often where even trained social workers can’t seem to tell the difference.

    It’s a fine line, but if it were me I would err on the side of the child every time, even at the risk of looking foolish or being wrong.
    Must be frustrating for you but you seem to handle it well. No one not in your shoes could be more the expert in this matter.

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    • Linda G. Hill's avatar

      I agree there are of course two possibilities – one, that I’m starving my kid and two, that I’m doing nothing of the sort. If she really thought I was doing something wrong then surely she’d have said something rather than just insinuate that I was too cheap to feed him an entire meal.
      Still, I have to believe that anyone would know the difference between a happy child and a miserable, hungry and abused one – and mine is probably the happiest kid anyone has ever met, which is why I believe she didn’t go the extra step to intervene, and likely why no one has ever actually questioned me directly or indirectly.
      Thanks very much for your comment. I do think I handle it well on the outside — I save the rants for my blog. hehe

      Liked by 1 person

  12. Red Hen's avatar

    The waitress couldn’t possibly know that your son is tube fed. From what you describe she may just have assumed that you wanted to share one course. And no, I wouldn’t go explaining my kid’s business to someone else just to satisfy their curiosity or make me look good in their eyes. As you say, you paid for the food, you were polite. In my book, after that, whatever you do is entirely your own business.

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  13. beth's avatar

    i can see you’ve had to deal with this before and i think you handled it just fine )

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  14. threekidsandi's avatar

    I have a habit of always assuming the worst when it comes to children, because I have seen so many abused children. But that is my issue, and not anyone else’s, nor is anyone else responsible for soothing my fears or allaying my suspicions. I am fully aware of my PTSD trigger paranoia. I am a pretty thorough person, though. My mother taught me to communicate through notes, when I did not want to talk about it. For myself, I have considered making a card to laminate and put on my table when I eat out, explaining why my children are behaving the way they do. Then anyone peering intently at my table could see it, and I wouldn’t have to say a word. But truthfully, they make eating out so very difficult that I haven’t made that little sign up, yet.

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    • Linda G. Hill's avatar

      Oh I so need a sign for when I’m dragging my son through the mall, kicking and screaming and attempting to bite me because I didn’t buy him a toy. I’ve been through behavioural specialists, taken the courses, know all the tricks, and yet there are some days when nothing works. I ignore the stares and the accusing looks that wonder if I’m torturing him when really I’m simply trying not to spoil him. A note would be just the thing. 🙂 Fantastic idea!

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      • threekidsandi's avatar

        I don’t think the signs will stay on our kids or ourselves when they are doing that and we are in motion on our way somewhere. But if we are staying put, and we put them on the table, is what I was thinking. Even if I have to take my son out to the car to cool down and try again, the sign would remain, on the table with the food. But packing up the other children to do that cool down time is so difficult, that I have not tried it. I have instead avoided restaurants, which is not going to help me get out to eat, or teach any of the kids about eating out, which is why I am trying to figure out strategies for restaurants.
        When I had to remove my kids kicking and screaming from the donut shop, I just picked one up and dragged the other with the baby on my hip, as she can hold on now. That won’t work next year, they keep growing. I don’t think the signs would work for lines or malls or grocery stores, or even when my middle son runs away down the street. Just an idea for restaurants, a simple Support Your Special Needs Children, or I Love Autistic Kids, or something. No offense meant. I am trying to figure it all out, too.

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        • Linda G. Hill's avatar

          I would suggest waiting until you have someone who will sit with your other kids while you deal with the problem one in a restaurant setting, if you plan to pack up and go. I rely heavily on the concept of ignoring the bad behaviour and paying attention to the good. If … IF that can be established at home then most of the time it works when I’m out as well. But not always.
          Best of luck with it all. I can so relate.

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  15. autismthoughts's avatar

    I don’t see anything she did as rude, but this doesn’t have tone of voice in it so maybe that made a difference. To be honest, I would be a little suspicious of the situation because I come from a background of working with abused children. I don’t think it’s necessary to explain yourself, but I can also understand why she may seem a little apprehensive.

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    • Linda G. Hill's avatar

      What she did wasn’t as much rude as it was assumptive. But you’re right. If I was in her position, I’d be looking for signs of abuse as well. There just aren’t any. Alex is outgoing, trusting, and always smiling and, according to the dozens of doctors, dieticians, and feeding specialists he sees every year, he’s the perfect weight for his size.

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  16. silverliningsanddustbunnies's avatar

    What a marvelous post! Awesomeness on the Mom scale!

    My heart goes out to you for having to deal with those situations. The world needs more people like you! Your courage and manners are your grace, extended to that woman, and blessings to you and your family.

    Like

  17. Jay Dee's avatar

    Oh, and thank you very much. You made me want to check Montana’s menu. I regret that a lot. It’s been years since I’ve eaten there, and now I really want it. Canada’s too far away to go for a meal at Montana’s.

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  18. jdgallagher's avatar

    I don’t think anyone should have to explain themselves, they are paid to do a job, they should just get on with it.

    I have Type 1 Diabetes and need a shot of insulin before every meal, when I was a teenager the amount of times that people in restaurants thought I was doing drugs was hilarious. I was asked to leave a restaurant once because despite my attempts at being discreet somebody had spotted me sticking the syringe into my stomach.

    I guess at the time in Ireland, Diabetes was seen as an old persons disease, it was almost unheard of to see a young person with it.

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    • Linda G. Hill's avatar

      It takes a particular personality type to find something like that hilarious. I actually do get a kick out of people thinking I’m starving Alex. I mean really, if I have to prove myself, I can. I’d just rather not. Let them jump to conclusions.
      I feel as though explaining myself is justifying my actions. And I have nothing to justify.

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  19. Jay Dee's avatar

    I’m on the side of thinking it’s none of the waitress’s business. However, I think it’s also a good test of customer service. Ask for a manager each time the serving staff do anything negative or positive. If neutral, then no big deal, right?

    And then a small part of me wants to embarrass them if they’re being nosy.

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  20. suzjones's avatar

    It must be difficult. I would have given him the small amount and asked him very pointedly “do you think you will be okay with this much or not”? And then let her watch his response.

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  21. Jeanette's avatar

    “no, he’s already eating, want to see?”

    Glad you kept to the high road, but sad that it even comes up.

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    • Linda G. Hill's avatar

      Yeah, that one’s always fun for the shock value. I wish Alex could always know what’s going on, so he could do it himself. …actually scratch that. He’s better off in his innocent world where he thinks most people are understanding.
      It is sad. Thanks for the support. 🙂

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  22. Paul Davis's avatar

    I have a tendency to over share. I’d say he only eats a little. If I’m really feeling risque, I’d say “Wanna see something cool?” Anyway, good to see your Canadian side kicking in when you’re being polite all the time 😉

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    • Linda G. Hill's avatar

      I wonder if he feels self-conscious when I show his button to people, so I don’t do it as often as I did when he was really little.
      The polite was absorbed at birth. It can’t be helped. 😛

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  23. joey's avatar

    I probably would’ve told her, for the sheer joy of watching HER embarrassment at being so presumptuous. Maybe it would change her way of thinking. But I’m inflammatory like that 😉

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  24. Opinionated Man's avatar

    I can’t imagine… so I’ll just send my support.

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  25. A.PROMPTreply's avatar

    Gosh. That is a really tough place and I’m so sorry..that has to happen to you so often. One of the things my friend, Mary (http://wp.me/p4tJb6-2J), taught me this past year was that you just don’t judge because you don’t know where someone else is coming from or what they’ve encountered on their way to you. I think that’s a really good rule of thumb to employ and I’m working hard on learning to apply it in all situations. In this case, we can flip this and not wonder what you should’ve said or done, but instead wonder where she’s been along the way to have made it so patently obvious that she disapproved of you and to have approached you with such rudeness never looking right or left to see what might have come before on your road, what do you think?

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    • Linda G. Hill's avatar

      I think it’s a case of most people don’t bother to think. Where could she have come from? Either from a place where there is no reason to consider the possibility of health issues in other people or a place where she simply doesn’t care. I’d rather hope for her sake that it’s the former. Can you think of any other possibilities?
      Anyone who hasn’t had to live through such things should have a friend like yours. Good for you for caring to see instead of judging. 🙂

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      • Dominika's avatar

        I agree, don’t bother to think – or they go on automatic, where they allow assumptions to run rampant. It can be pretty easy for that to happen in boring service jobs where you see people a lot day in and day out. Still, I used to think that should make people more aware, but that doesn’t seem to be the case because a lot of people carry a general assumption that if they look normal, they must be normal – if they don’t look normal, they must not look normal – it’s a shallow way of approaching life. My little brother is autistic, so he’ll have complete meltdowns and temper tantrums in public places without caring who is around, what they think, or if they tell him to stop. My family has gotten plenty of weird looks, judgmental comments, and strange behavior because of it. We often have to mention off-hand or explain that he has autism to random strangers so that they’ll calm down from the automatic assumption – reaction machine.

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      • A.PROMPTreply's avatar

        I have no other concrete ideas, but your post and her reactions just made me think she must come from somewhere where she’s used to being judged and is embittered by it and anxious to pass it off to the next person, you know? But you’re right….especially in this day and age, people are just too busy to actually stop and think or even care about where other people are at. It’s an instant gratification society and therefore snap judgements, I guess, are the new norm. As for me and mine…..we will try and remember that not everything is as it seems and do our best to think where someone else might have been before they made their journey to us….I hope anyway.

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        • Linda G. Hill's avatar

          I appreciate that. 🙂
          I do think people see things through the filter of their own experiences. How can we help it? It’s only the most open-minded of us who can imagine what life must be like for others in different circumstances. And only those with compassion who care to try. It’s sad to think there are many people who lack that level of caring – but I fear that’s the society we’re breeding these days.

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