Life in progress


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At a Loss for Words

Where’s your communication book? I’ll ask your teacher to tell you.

It’s the most common phrase that is signed in my household, aside from, I love you, and Go to sleep already.

The problem is, of course, that my son Alex doesn’t ‘speak’ the same language as I do, and sometimes I’m the one at a huge disadvantage. I, whose life consists of putting words together to make meanings clear, am unable to communicate with my own offspring. What kind of sick force in the universe came up with this irony?

Tonight I had to try to explain to Alex why he wasn’t able to eat from my plate. It’s something that I allow him to do on occasion–not something I allowed my other two sons to do–since he doesn’t eat much more than one piece of anything, being that he’s tube fed. But now, since I’m not sure I’m completely over this bug, it’s a no-no. Germs are not something I often talk about, and so once again I’m faced with my lack of knowledge, and my incompetence in being fluent in American Sign Language.

Can you fathom the frustration at not being able to say the simplest of things? With a hearing child, the conversation would be over in four or five sentences. “I’m sick, and if you eat from my plate you might get sick. Why? Because there are these things called germs – tiny things like bugs crawling around in my food. You still want some? I thought not.”

Instead? It’ll have to wait until tomorrow.

Don’t get me wrong – I’m grateful that I have the resource of the Deaf school to back me up when I need it, and especially that they are teaching my son to communicate with his peers. What scares me are the stories I was told by a few different Deaf people of their hearing families – that they grew apart. The Deaf have their own community. In fact “Deaf” is capitalized when the word is used to describe a person in the same way American is – because it denotes that very community.  It’s only by virtue of the fact that Alex has a global intellectual delay that I might have to care for him well into adulthood.

In the meantime, I’ll keep trying to learn his language. Because once he’s twenty-one and has to leave school, I won’t have a communication book to write in. And I’ll be at a complete loss for words.


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An open letter to the woman who lives behind me (a rant)

Now normally I’m not the vindictive type. I usually just let things go. But before my backdoor neighbour has a chance to move out (which she will any day) I’d love to be able to give her a little present in the form of a song.

Here is my letter:

Dear Natasha,

When I met you and became friends with you we had in common the fact that we both have children. You have six of them, which you repeatedly pointed out were little angels, I have a normal teenager who tends to swear (what teen doesn’t?) an autistic teenager who has tantrums, and a Deaf child who wants to be friends with your kids.

I didn’t really notice there was anything wrong with you until you commented on the fact that you’d traveled all over the world but would never go to a country like Japan because they weren’t Christian there. o_O

After a few weeks of summer break that year, and after having lent you all my DVD’s that teach kids how to speak American Sign Language in a fun way, you gave them back to me, saying that your children weren’t interested in playing with my son (they showed no indications that they felt this way) because of the way he showed his enthusiasm for actually having friends his own age by looking into your back yard and screaming with delight when he saw your kids doing something fun. You then went on to explain to me that I needed to teach him how to behave himself… after all, you didn’t have any problems making your kids behave.

So, Natasha, I leave you with this song. The heathen I am. And a big nakayubi to you.

No love,

Linda

To my readers:  Please note, when (and if) you listen to this wonderful gem, the chanting at around 2:19. Apart from the fact that I can imagine myself singing along at the top of my lungs exactly the way Sakurai Atsushi belts it out from on top of the table on my deck, my teenaged son and a few of his friends (if I have my way) would be trudging slowly around a bonfire in my back yard, fully cloaked in robes with pointy hoods. Please also note that the lyrics don’t matter. It’s the thought that counts.