I’m at a crossroads, of sorts, in regards to my son, Alex, and his behaviour. Keeping in mind that it’s 5:46am and I’ve had two hours of sleep all night, I’m writing this here as both a way to get it in black and white so I can see the problem from a different perspective, and to put the conundrum out there in hopes that someone else has gone through something similar. My hopes aren’t too high.
First, the history: To say that Alex has a hard time making decisions is a gross understatement. When trying to choose, for instance, between staying home to play a game or come with me to the grocery store, he’ll change his mind at least a dozen times. He’ll get dressed and then completely undressed; he’ll whine, cry, scratch his head a lot – it’s utter torture. I have, however, reduced it from a half hour ordeal to, “I’m leaving, if you want to come with me, be ready before I walk out the door.” As a result the process now only takes five minutes.
He also suffers with the occasional insomnia, and for the past week he’s been combining the lack of decision-making skills with lack of sleep. The fact that there are two single beds in his room has never been a problem before. When my mother comes to visit on the weekends, she sleeps in his room and he’s quite happy with that deal. Only for a week now he can’t decide which bed he wants to sleep in. At approximately 2:30 every morning since before New Year’s Eve, he’s been doing the whining, crying, head-scratching routine. It’s torture for both of us, and it goes on for a couple of hours each night. I tried hanging a calendar in his room and striking up a deal with him that he sleeps one month in one bed and the next in the other. That worked for one night – coincidentally it was the same night he didn’t have a choice because Nanny was in the other bed.
So. I’m faced with a dilemma. Do I go to all the trouble of taking the extra bed out of his room?
On the surface it seems to be the logical thing to do.
Except: there is still the communication barrier thing going on. Not being completely fluent in my own son’s language – American Sign Language – I never really completely know if he understands the consequences of his actions before they happen. It’s always that one word I’m missing: “If you don’t get ready now, I’m leaving without you.” I will temporarily lose from my addled brain the sign for ‘without.’ Or, “If you don’t stay in one bed all night, I’m going to move the other bed out.” Is he getting that I’m going to move the bed? Or does he think I’m going to let him sleep in another room? Even if I turn the sentence around and keep it positive, I have the same problem. Aside from sleeping in his room, which is exactly what he wants me to do and will ensure that I’ll never sleep in my own bed again, I can’t keep him in bed at night. In the past I’ve been able to demonstrate what I mean. Like during the period when he decided to turn the television on in his room at 2am. I tried to explain to him that if he didn’t leave it off I’d take it out of the room, and when that didn’t work, I took it out of the room. He got it after that. Moving a bed, box spring and mattress down four flights of stairs is a rather more difficult undertaking.
So, my next thought was, tip the bed on its side and leave it where it is. Only that would be an all new brand of hell for my little darling and his OCD.
I know I need to ask his school for help. At this point his teacher is already practically living my life for me in regards to making sure he does as he’s told at home. They, unlike me, know how to explain things to him in no uncertain terms. It’s easy to see how vacations from school become nightmares at home.
Before you ask, there is no support for hearing parents to learn sign language for their Deaf children in the area.
Oh, and I just found out there’s no school today because of flash freezing. Oh joy.
Any suggestions, hugs, or paid-in-full Caribbean vacations can be left in the comment box and will be gratefully received.
Post on your site, and join Just Jot it January. The rules are easy!
January 7, 2014 at 4:57 pm
I would think I’d give him the idea that one bed was Granny’s and the other, his own. Whether or not Granny is there, it is still Granny’s bed. Or, if others sleep there sometimes, it is the Guest’s bed. He can’t be sleeping in the guest bed.
This reminds me of how Moo had a trundle bed for years. Sissy had it before her, and she never bothered with it unless she had a guest. Moo, on the other hand, would pull it out to play, or sleep in it herself. The trundle had an inferior mattress and was a chore to dress. I didn’t appreciate the added linen washing. One of the great joys I’ve had was to make it clear to Moo that the trundle wasn’t her bed to pull out and play with, or to sleep on. It was merely a guest bed, for guests.
I don’t know if that would help you, but it did help Moo/Me.
Best of luck. If anyone sends you to the Caribbean, please send us a postcard!
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January 7, 2014 at 9:34 pm
Thanks for the benefit of your experience. I might end up doing that. For now I’ve just stripped it in hopes that it won’t seem as inviting to him in the middle of the night.
I’ve pretty much given up on the idea of the Caribbean… the best I’m likely to do at this point is get myself Photoshopped in a picture standing on the deck of the Black Pearl next to Johnny Depp.
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January 7, 2014 at 9:58 pm
You know, Linda, there are worse things than being Photoshopped like that! Be sure to share that as well!
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January 7, 2014 at 9:59 pm
I will! 😀
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January 7, 2014 at 2:53 am
Sorry I don’t have any useful suggestions, but my thoughts and prays are with you.
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January 7, 2014 at 11:49 am
Thank you, Diana 🙂
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January 6, 2014 at 8:59 pm
I can only offer hugs from a distance and this ‘energy-sensation’ that came from my heart as I was reading. If I could afford a cruise, we’d both go.
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January 6, 2014 at 9:45 pm
Then you must win the lottery! 🙂
Thanks very much, Myas. I appreciate the energy and the warm feelings 😀
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January 6, 2014 at 9:47 pm
🙂
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January 6, 2014 at 8:24 pm
Big love. That’s all I have x
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January 6, 2014 at 8:27 pm
Thanks very much. It’s enough and then some 🙂
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January 6, 2014 at 5:26 pm
*hugs*
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January 6, 2014 at 7:07 pm
Thank you!!!! 🙂
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January 6, 2014 at 5:01 pm
Mars response: Would Alex’s doctor okay melatonin as a benign remedy for infrequent insomnia?
Venus response: Feel for you, Linda. My middle guy didn’t sleep through until 20 months, including a period of night terrors, and I’ve never been so tired in all my life. (Wait, you know this!) Feel for you again. Hang in there. Alex is lucky to have you.
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January 6, 2014 at 7:07 pm
Venus reply: Thank you my dear. Actually, Alex is lucky he’s so darned cute. 😉
Mars reply: Your response prompted me to call the pharmacy to see if I can up his dose of melatonin. The answer was, yes. 😀
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January 6, 2014 at 8:22 pm
Hope you get some quality sleep!
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January 6, 2014 at 8:26 pm
Thanks, me too 🙂
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January 6, 2014 at 4:22 pm
I wish I could help…… I want to help . I just do not know what to suggest! I shall pray for you and just to even things up I shall send Vlad round to help out! XXXXXXXXXXXXXXXXX
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January 6, 2014 at 4:28 pm
Ha! Thanks, Willow for the support and the offer of Vlad. 🙂
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January 6, 2014 at 3:45 pm
Would placing softy toys or lots of cushions and pillows on the other bed cause issues for his OCD or would it deter him from wanting to sleep there?
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January 6, 2014 at 4:27 pm
Nah, he’d just clean them up. 😛 I’m actually thinking about just stripping the other bed for now and hiding the extra sheets. Knowing Alex though, he may take the ones off the bed he’s sleeping in and change them over.
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January 6, 2014 at 11:17 am
First of all, you have my prayers for strength and courage. I think the idea of the colored cards is excellent. I’m wondering if the school couldn’t give you more direction in sign language.Perhaps they could recommend an online course, or one of them might be willing to tutor you in their methods of discipline. Have you had him medically evaluated lately? There might be dietary or vitamin issues. I have no real answers. I can only offer my sympathy and my listening ear.
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January 6, 2014 at 12:58 pm
I’ve had a Behavioral Consultant working with us – Alex has been evaluated inexhaustibly, and I have been working with the school as much as they’ll allow. Online learning of sign language isn’t an option – it takes human interaction to learn – but that would be ideal. His diet consists of a special formula that he gets through a tube, so I can’t do much beyond that.
All excellent points, but unfortunately ones that I can do nothing more about. I do appreciate your suggestions, and your good wishes. Thank you, Professor. 🙂
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January 6, 2014 at 1:26 pm
You are so welcome, Linda. I know you exhaust every explanation and every suggestion, and it, in turn, exhausts you. I hope you have people to help you at home. You can’t do everything. Please know that you have a lot of concerned bloggers to talk to.
Patricia
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January 6, 2014 at 4:25 pm
I do have some help here at home, occasionally. The kids’ overnight visits with their dad have been few and far between since the summer, but I’m hoping they’ll go back to their regular bi-weekly schedule soon.
Thank you, Patricia, for your support. 🙂
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January 6, 2014 at 10:24 am
It must be frustrating since it is clear how much you love your son. I am not sure where he is with regard to writing – but perhaps whilst still using sign language you could also incorporate some brightly coloured cards that you have both completed – for example ‘Alex’s Bed’ and ‘Grannies
Bed’ and put on the headboards.
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January 6, 2014 at 10:43 am
Visual cues are an invaluable amount of help most of the time and so under normal circumstances I would say that’s a great idea. However when it’s 2am and he gets something in his head, I’m afraid there’s nothing that’s going to stop him other than having no choice at all.
Perhaps once the school is involved though, that might be a useful way to remind him… maybe on top of having the labels on the beds I could get a picture of his teacher wagging her finger at him. 😀
Okay, you’ve talked me into it! Or I have. I’m too tired to discern one way or the other. Thanks for the suggestion!
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January 6, 2014 at 9:10 am
I wasn’t sure if I should ‘like’ this post, because I felt real bad reading it because I get a little pissed with my nieces and nephew’s tantrums and they are much simple issues when compared to what you are facing. And I don’t have any idea on what it is to be a mom. But I will definitely wish and pray that you get all the necessary help you need.
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January 6, 2014 at 9:34 am
Thanks very much, KG. All the energy I can get, cosmic or otherwise, is appreciated, as are the thoughts. 🙂
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January 6, 2014 at 7:40 am
Nothing is worse than dealing with a kid when you are sleep deprived. I have a nephew who is hearing impaired, and I believe OCD that was never diagnosed, or treated. I wish I could ask my sister how she made it through the younger years, I do remember some of her frustrations, but she lived in a community with resources. Reaching out online may help. I wish you all the best.
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January 6, 2014 at 7:23 am
I’m willing to listen, but I have no experience in this area at all. I hope someone comes along who has some good ideas. I’ll be thinking of you and Alex and hoping things work out.
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January 6, 2014 at 8:41 am
Thanks for your thoughts, Deborah. Having someone out there to sympathize helps. 🙂
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January 6, 2014 at 7:22 am
Sadly, no Caribbean vacations to give you. And no advice either. But I do have a shoulder to cry on, an ear to listen and a heart that breaks knowing I don’t have a solution.
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January 6, 2014 at 8:39 am
Thanks very much, Pamela. A little comfort goes a long way. 🙂
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January 6, 2014 at 7:21 am
I’m not really sure, but I would agree that moving an entire bed in and out of the room would be a major difficulty. I know with my son, I’ve done a few things like that, think he’s learned his lesson, and then it repeats. Does your son know about flipping coins? Maybe he can flip a coin each night to decide on the bed he wants, but I don’t know if that would last the night. Sorry, but I don’t think I’m much help here.
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January 6, 2014 at 8:38 am
Yeah, it’s getting him to stick to his decision that’s the hard part. That’s okay, Charles. I appreciate the input – knowing I’m not completely alone helps.
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January 6, 2014 at 9:28 am
How old is he if I may ask?
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January 6, 2014 at 9:31 am
He’s thirteen, but he has the development of a six year old – during puberty. It’s like he’s perpetually in his terrible twos.
All I really know for sure is that I gave birth to him thirteen years ago. The broader answer to the question is, I don’t know how old he is.
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January 6, 2014 at 9:33 am
I’m guessing the mental development is the one to look at. I know a few people in their 30’s that I have to talk to like they’re 15. Mostly telling them they’re too old to have their pants so low.
What about a reward in the morning for staying in his bed all night?
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January 6, 2014 at 9:48 am
Yep, I keep trying that one… That’s one of the things the school has been helping me with, actually. But after 18 days of no school it seems he’s forgotten the lesson. His attention span is very short (like a toddler) and so what works best in his mind is whatever gives him immediate gratification, and consequences be damned, whether they’re good or bad ones.
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January 6, 2014 at 9:53 am
My son just went back and we have the same issue. He’s a very finicky eater, so we’re battling him to eat more than fries and yogurt. Progress was being made and then he was home where he knew everything could be accessed, so now we’re back to square one with tough love.
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January 6, 2014 at 10:02 am
It is tough too, isn’t it? Stay strong, my friend.
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January 6, 2014 at 10:04 am
Thanks. I take some comfort in the fact that he’s 4 and still portable.
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January 6, 2014 at 10:07 am
Haha! Yeah, you’ve got to hope they grow out of it before they’re not anymore. Alex still only weighs 60lbs, and at just over 4 feet tall I can still pick him up if I have to. My eighteen year old Autistic son who is almost 6 feet and shaves is another story altogether.
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January 6, 2014 at 10:18 am
Yeah. Once they’re taller, you lose that ‘pick up’ advantage.
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January 6, 2014 at 7:14 am
I know it would be a lot of work but would replacing the single bed with a couch (love seat size) that flips to a bed help? You would only have it out as a bed when needed. Otherwise it is a couch.
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January 6, 2014 at 8:36 am
That would be a great idea, actually. Maybe I’ll look into that. Thanks very much 🙂
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