Life in progress

JusJoJan 6 – Vacations Are Fun

47 Comments

I’m at a crossroads, of sorts, in regards to my son, Alex, and his behaviour. Keeping in mind that it’s 5:46am and I’ve had two hours of sleep all night, I’m writing this here as both a way to get it in black and white so I can see the problem from a different perspective, and to put the conundrum out there in hopes that someone else has gone through something similar. My hopes aren’t too high.

First, the history: To say that Alex has a hard time making decisions is a gross understatement. When trying to choose, for instance, between staying home to play a game or come with me to the grocery store, he’ll change his mind at least a dozen times. He’ll get dressed and then completely undressed; he’ll whine, cry, scratch his head a lot – it’s utter torture. I have, however, reduced it from a half hour ordeal to, “I’m leaving, if you want to come with me, be ready before I walk out the door.” As a result the process now only takes five minutes.

He also suffers with the occasional insomnia, and for the past week he’s been combining the lack of decision-making skills with lack of sleep. The fact that there are two single beds in his room has never been a problem before. When my mother comes to visit on the weekends, she sleeps in his room and he’s quite happy with that deal. Only for a week now he can’t decide which bed he wants to sleep in. At approximately 2:30 every morning since before New Year’s Eve, he’s been doing the whining, crying, head-scratching routine. It’s torture for both of us, and it goes on for a couple of hours each night. I tried hanging a calendar in his room and striking up a deal with him that he sleeps one month in one bed and the next in the other. That worked for one night – coincidentally it was the same night he didn’t have a choice because Nanny was in the other bed.

So. I’m faced with a dilemma. Do I go to all the trouble of taking the extra bed out of his room?

On the surface it seems to be the logical thing to do.

Except: there is still the communication barrier thing going on. Not being completely fluent in my own son’s language – American Sign Language – I never really completely know if he understands the consequences of his actions before they happen. It’s always that one word I’m missing: “If you don’t get ready now, I’m leaving without you.” I will temporarily lose from my addled brain the sign for ‘without.’ Or, “If you don’t stay in one bed all night, I’m going to move the other bed out.” Is he getting that I’m going to move the bed? Or does he think I’m going to let him sleep in another room? Even if I turn the sentence around and keep it positive, I have the same problem. Aside from sleeping in his room, which is exactly what he wants me to do and will ensure that I’ll never sleep in my own bed again, I can’t keep him in bed at night. In the past I’ve been able to demonstrate what I mean. Like during the period when he decided to turn the television on in his room at 2am. I tried to explain to him that if he didn’t leave it off I’d take it out of the room, and when that didn’t work, I took it out of the room. He got it after that. Moving a bed, box spring and mattress down four flights of stairs is a rather more difficult undertaking.

So, my next thought was, tip the bed on its side and leave it where it is. Only that would be an all new brand of hell for my little darling and his OCD.

I know I need to ask his school for help. At this point his teacher is already practically living my life for me in regards to making sure he does as he’s told at home. They, unlike me, know how to explain things to him in no uncertain terms. It’s easy to see how vacations from school become nightmares at home.

Before you ask, there is no support for hearing parents to learn sign language for their Deaf children in the area.

Oh, and I just found out there’s no school today because of flash freezing. Oh joy.

Any suggestions, hugs, or paid-in-full Caribbean vacations can be left in the comment box and will be gratefully received.

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Author: Linda G. Hill

There's a writer in here, clawing her way out.

47 thoughts on “JusJoJan 6 – Vacations Are Fun

  1. joey's avatar

    I would think I’d give him the idea that one bed was Granny’s and the other, his own. Whether or not Granny is there, it is still Granny’s bed. Or, if others sleep there sometimes, it is the Guest’s bed. He can’t be sleeping in the guest bed.
    This reminds me of how Moo had a trundle bed for years. Sissy had it before her, and she never bothered with it unless she had a guest. Moo, on the other hand, would pull it out to play, or sleep in it herself. The trundle had an inferior mattress and was a chore to dress. I didn’t appreciate the added linen washing. One of the great joys I’ve had was to make it clear to Moo that the trundle wasn’t her bed to pull out and play with, or to sleep on. It was merely a guest bed, for guests.
    I don’t know if that would help you, but it did help Moo/Me.
    Best of luck. If anyone sends you to the Caribbean, please send us a postcard!

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  2. dianaroggenbuckebrown's avatar

    Sorry I don’t have any useful suggestions, but my thoughts and prays are with you.

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  3. Myas's avatar

    I can only offer hugs from a distance and this ‘energy-sensation’ that came from my heart as I was reading. If I could afford a cruise, we’d both go.

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  4. sistasertraline's avatar

    Big love. That’s all I have x

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  5. navigator1965's avatar

    Mars response: Would Alex’s doctor okay melatonin as a benign remedy for infrequent insomnia?

    Venus response: Feel for you, Linda. My middle guy didn’t sleep through until 20 months, including a period of night terrors, and I’ve never been so tired in all my life. (Wait, you know this!) Feel for you again. Hang in there. Alex is lucky to have you.

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  6. willowdot21's avatar

    I wish I could help…… I want to help . I just do not know what to suggest! I shall pray for you and just to even things up I shall send Vlad round to help out! XXXXXXXXXXXXXXXXX

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  7. suzjones's avatar

    Would placing softy toys or lots of cushions and pillows on the other bed cause issues for his OCD or would it deter him from wanting to sleep there?

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    • Linda G. Hill's avatar

      Nah, he’d just clean them up. 😛 I’m actually thinking about just stripping the other bed for now and hiding the extra sheets. Knowing Alex though, he may take the ones off the bed he’s sleeping in and change them over.

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  8. http://theenglishprofessoratlarge.com's avatar

    First of all, you have my prayers for strength and courage. I think the idea of the colored cards is excellent. I’m wondering if the school couldn’t give you more direction in sign language.Perhaps they could recommend an online course, or one of them might be willing to tutor you in their methods of discipline. Have you had him medically evaluated lately? There might be dietary or vitamin issues. I have no real answers. I can only offer my sympathy and my listening ear.

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    • Linda G. Hill's avatar

      I’ve had a Behavioral Consultant working with us – Alex has been evaluated inexhaustibly, and I have been working with the school as much as they’ll allow. Online learning of sign language isn’t an option – it takes human interaction to learn – but that would be ideal. His diet consists of a special formula that he gets through a tube, so I can’t do much beyond that.

      All excellent points, but unfortunately ones that I can do nothing more about. I do appreciate your suggestions, and your good wishes. Thank you, Professor. 🙂

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      • http://theenglishprofessoratlarge.com's avatar

        You are so welcome, Linda. I know you exhaust every explanation and every suggestion, and it, in turn, exhausts you. I hope you have people to help you at home. You can’t do everything. Please know that you have a lot of concerned bloggers to talk to.
        Patricia

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        • Linda G. Hill's avatar

          I do have some help here at home, occasionally. The kids’ overnight visits with their dad have been few and far between since the summer, but I’m hoping they’ll go back to their regular bi-weekly schedule soon.

          Thank you, Patricia, for your support. 🙂

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  9. Smorgasbord - Variety is the Spice of Life.'s avatar

    It must be frustrating since it is clear how much you love your son. I am not sure where he is with regard to writing – but perhaps whilst still using sign language you could also incorporate some brightly coloured cards that you have both completed – for example ‘Alex’s Bed’ and ‘Grannies
    Bed’ and put on the headboards.

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    • Linda G. Hill's avatar

      Visual cues are an invaluable amount of help most of the time and so under normal circumstances I would say that’s a great idea. However when it’s 2am and he gets something in his head, I’m afraid there’s nothing that’s going to stop him other than having no choice at all.

      Perhaps once the school is involved though, that might be a useful way to remind him… maybe on top of having the labels on the beds I could get a picture of his teacher wagging her finger at him. 😀

      Okay, you’ve talked me into it! Or I have. I’m too tired to discern one way or the other. Thanks for the suggestion!

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  10. KG's avatar

    I wasn’t sure if I should ‘like’ this post, because I felt real bad reading it because I get a little pissed with my nieces and nephew’s tantrums and they are much simple issues when compared to what you are facing. And I don’t have any idea on what it is to be a mom. But I will definitely wish and pray that you get all the necessary help you need.

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  11. momof3isnuts's avatar

    Nothing is worse than dealing with a kid when you are sleep deprived. I have a nephew who is hearing impaired, and I believe OCD that was never diagnosed, or treated. I wish I could ask my sister how she made it through the younger years, I do remember some of her frustrations, but she lived in a community with resources. Reaching out online may help. I wish you all the best.

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  12. Deborah's avatar

    I’m willing to listen, but I have no experience in this area at all. I hope someone comes along who has some good ideas. I’ll be thinking of you and Alex and hoping things work out.

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  13. Pamela Beckford's avatar

    Sadly, no Caribbean vacations to give you. And no advice either. But I do have a shoulder to cry on, an ear to listen and a heart that breaks knowing I don’t have a solution.

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  14. Charles Yallowitz's avatar

    I’m not really sure, but I would agree that moving an entire bed in and out of the room would be a major difficulty. I know with my son, I’ve done a few things like that, think he’s learned his lesson, and then it repeats. Does your son know about flipping coins? Maybe he can flip a coin each night to decide on the bed he wants, but I don’t know if that would last the night. Sorry, but I don’t think I’m much help here.

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  15. quiall's avatar

    I know it would be a lot of work but would replacing the single bed with a couch (love seat size) that flips to a bed help? You would only have it out as a bed when needed. Otherwise it is a couch.

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