Life in progress


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Hearing world – #AtoZ Challenge

Deaf people have to survive in a hearing world. This is a fact. If there are such things as Deaf stores, and Deaf hospitals, I don’t know of them. There are, of course, Deaf people working in public service positions–my bank has a Deaf teller–but it’s uncommon.

As the parent of a Deaf child who is growing up and will one day, hopefully, be independent, the fact that my son will out alone in a society that views him as different, is a concern for me. Alex is at a disadvantage, having not grown up exposed to his first language as most children are. Immersion into American Sign Language didn’t happen, and so by the time he reached the Deaf school that he now attends, he was years behind many of his peers. But at the same time he has an advantage. He’s already learned how to communicate, somewhat, with the hearing. He has an innate understanding that he needs to demonstrate what he wants without being able to verbalize. He has adapted.

On the flip side, I remember a story that my ASL teacher told us when I was in my third year of classes. He was the only Deaf member of his family. He told us of family gatherings and dinners when he was a child and through his teenage years when he would sit and eat, and no one would talk to him. They were all busy yammering away; he said he felt completely isolated. Consequently, he moved away–right out of the province–and had stayed away since. I can’t say he hated his family, but he seemed extremely bitter.

I fear this happening to Alex. I try my best to translate for him during dinners, but it’s difficult. First, keeping up with the conversation in ASL when my vocabulary isn’t up to par, and second, signing with a knife and fork in my hands. Despite this, he seems well-adjusted. I do what I can to make sure he’s included, at least in discussions that concern him. It’s more difficult when I’m talking with someone about something that doesn’t – with hearing kids, boring adult talk is naturally tuned out. Again, he’s at a disadvantage – if he was part of a Deaf family, he’d know to ignore it without having to be told it doesn’t concern him. On my end, I’m constantly saying to him, “It’s nothing.” I can only hope that he can tell by my body language and facial expression that I’m being sincere, and not just dismissing him as unimportant.

Alex, 2009. His usual charming self.

My A to Z theme concerns the joys and challenges of being the hearing mother of my Deaf son, Alex. To learn more about his beginnings in life, click here to go to my first A to Z entry.


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Grammar – #AtoZ Challenge

You might think that American Sign Language is an extension of English, and therefore the grammar is the same. It’s not. This creates a bit of a sense of multi-tasking whilst trying to speak and sign at the same time, but with practice it can be done. I know my Sign grammar is not great, but there are a few things that are easy to remember, and a few that are necessary.

One thing I learned fairly quickly NOT to do, is say to my Deaf son, Alex, “Look at that!” when I want him to notice, say, a bird flying overhead. If I say, “Look, a bird!” it’s totally wrong. Why? Because if I sign “Look!” or even point at something, I’ve lost Alex’s attention on myself, so he has no idea what he’s looking for. If he could hear, he’d listen for further instruction. But he’s Deaf. So while he’s gazing out he window at the trees, I’m wildly signing the word “bird” for my own benefit. The proper way to do it in ASL is, “A bird, look!” Alex will then know what to look for. ASL grammar is important.

Another instance is the verb “to be.” It’s pretty much eliminated from ASL. Unlike Signed English, which, to quote Google, “…is a sign language dialect which matches each spoken word of English,” ASL, as you may have guessed, has a grammar unique to the needs of Deaf people. If I want to say “I am going,” I sign, “I go.” If I want to say, “I went,” I sign, “I go finished.” For a visual https://www.signingsavvy.com/sign/WENT/6576/1 I often speak to Alex out loud when I sign to him, and many times, since my brain is rarely up to multi-tasking, I’ll say exactly what I’m signing, which must sound quite funny to anyone listening.

Because tenses are pretty much non-existent in ASL it’s important to mention the “when” at the beginning of a sentence, when the action will take place in the future. For example, “Tomorrow, we go to the toy store.” This has become an ingrained part of Alex’s sentence structure. Which means if I say it backwards: “We’re going to the toy store tomorrow,” Alex gets his coat on first, and then waits to find out what we’re doing tomorrow.

It really takes grammar-nazi-ism to a whole new level.

My A to Z theme concerns the joys and challenges of being the hearing mother of my Deaf son, Alex. To learn more about his beginnings in life, click here to go to my first A to Z entry.


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Facts of Life – #AtoZ Challenge

When learning any language, we start with the basics, introducing ourselves, explaining where we live, etc. Then we begin to learn the names of things so we can ask for them. All of this is fairly straightforward. But when we learn a new language, we’re normally doing it for ourselves, for travel or to communicate with a native speaker. We’re not usually learning it in order to teach a child his or her first language.

While pointing and naming is all well and good, children ask why things are the way they are. It’s practical. How do we know the difference between the consequences of stealing a cookie versus running out into the middle of a busy intersection? Hopefully not by experience. Obviously, the consequences of getting hit by a car was something I learned to communicate to Alex early on. But what about the more innocent stuff?

Why is the sky blue? How do wireless electronics work? Why is this Russian/Korean/Indian show on my laptop but it’s not on TV, like The Price is Right is? (He watches shows from all over the world; spoken language is of no consequence to him.) I have no way to answer many of his questions, short of becoming completely fluent in Sign Language. The closest place to receive such an education is in Toronto (Ontario, Canada), which is too far to commute to, to take classes I have neither the time nor the money for at the moment.

I might have advanced my education more after Alex was born, but the courses in Ottawa only went to a certain level. On top of that, we lived in the Province of Quebec – a province that has its own Sign Language (Langue des signes du Québec). Finding a professional to teach Alex American Sign Language in Quebec was next to impossible, and the only Deaf school for children in Ottawa teaches LSQ. So we packed up and moved to Ontario, to a city with a school whose primary language is ASL.

I do hope to learn more Sign someday. For now, I’m doing the best I can with help from his teachers.

My A to Z theme concerns the joys and challenges of being the hearing mother of my Deaf son, Alex. To learn more about his beginnings in life, click here to go to my first A to Z entry.


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Eyes – #AtoZ Challenge

My A to Z theme concerns the joys and challenges of being the hearing mother of my Deaf son, Alex.

They say being deaf makes the eyesight better, but I had no idea what that meant until I took American Sign Language classes. Not hearing doesn’t improve the quality of a person’s eyesight – no one is going to from 20/200 (being able to only read the giant “E” at the top of an eye chart) to 20/20 because they are deafened. “Having better eyesight” simply means the brain works faster with visual stimulation. Take, for instance, the alphabet. Say it out loud as fast as you can possibly say it, and then consider a native signer can fingerspell it as fast as you can say it, and the average Deaf person can understand every letter as well as someone who hears can understand your speaking of it. Mindboggling, isn’t it? I used to come home from my three-hour classes once a week exhausted like I’ve never been exhausted before, and just because of the level of concentration required.

A to Z in ASL

What this means for me as a parent is that Alex doesn’t miss much. Even as a toddler, he was far more observant than the average kid. His attention to detail was such that, even before he knew what the letters of the alphabet were, he could match seventy-odd black VHS tapes by the labels together with their covers. It also means that he can easily pick up on facial cues.

Alex watches the show Ellen every day. He loves the way she dances and often mimics it. Sexy hip-grinding stuff? He’s on it. He’s also the size of a six-year-old, even though he’s fifteen, so he looks very cute doing it. This makes it very difficult for me to tell him to stop dancing like that in public. No matter what I sign, (stop, that’s rude, etc.) there’s a part of me that finds it funny. It’s easy for him to ignore what I’m saying with my hands, when the slightest twitch of an eyebrow tells him that he’s amusing me.

Believe me, you never want your teenagers to be able to read your mind. Mine can.


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Communication – #AtoZ Challenge

My A to Z theme concerns the joys and challenges of being the hearing mother of my Deaf son, Alex.

When I discovered Alex was Deaf, I knew I would have to learn Sign Language. However, there was no point starting a formal education too early. I knew from experience that if you don’t use a language, you lose it pretty quickly. So in lieu of classes, I devised a few logical signs of my own. I think the first I ever taught him, before he came home from the hospital at the age of eight months, was to let him know when I was leaving and coming right back. I simply held my index finger up as I walked out the door. When I was leaving for the evening, I waved goodbye so he would know the difference. It didn’t take long before he needed to know why people were exiting his room; he began to cry whenever a nurse left, even for a moment. “Just a second” was the first of many I would have to teach the nursing staff over the years. I found the signs for “mom” and “dad,” and a few others so I could add to both my vocabulary and that of the people caring for him in the hospital when I couldn’t be there myself.

Even now, fifteen years later, it’s necessary to teach the nursing staff how to sign whenever he stays in the hospital. And not just one nurse, because signing is usually the last thing they have time to relate to each other when they change shifts. They normally have 15 minutes to go through the medical history and changes of all the patients on the floor. If Alex is admitted for a few days, there’s a fair bit of staff rotation. When a hospital is close to a border, such as the Ontario/Quebec border in Canada, the staff are expected to be bilingual, yet there is no provision for teaching hospital staff Sign Language. At the very least, it should be mandatory to have a reference book on every floor. I had to buy one of my own and lend it, always hoping it would come back home after Alex’s stay.

For a child without diverse medical needs, this would only be a problem occasionally. For us, it’s an ongoing concern. I honestly don’t understand why it’s not mandatory to teach Sign in schools. If you follow my A to Z, you may agree with me by the time the end of April gets here that they should.


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Body Language – #AtoZ Challenge

My A to Z theme concerns the joys and challenges of being the hearing mother of my Deaf son, Alex.

Though Sign Languages are as different as spoken languages worldwide, one thing is consistent; they all rely heavily on body language and facial expression. I’ll never forget the first time I was shown the sign for “not yet.” I actually laughed at my teacher, thinking he was joking. There was a mortifying moment. “Not yet” is exactly the same hand-sign as “late,” only with the tongue stuck out. (For a visual: http://www.lifeprint.com/asl101/pages-signs/n/not-yet.htm ) Anyway, by the time my son Alex started to learn American Sign Language I pretty much had my own face and body under control. Unless I’m angry, which is another story altogether. But when we go out in public, the results of people doing things without realizing it can range from amusing back to mortifying. For me. Alex has a blast.

For instance, almost any time I take him out, someone speaks to him. He’s a very engaging little boy. He smiles at people all the time. Invariably they ask him questions, and when they do, they smile back and usually nod their heads because they’re asking a positive question that they want him to agree to:

“Are you looking forward to going back to school?”

“Do you like Spiderman?” (Because he’s always either holding or wearing something to do with Spiderman.)

Alex sees them nod and smile and he nods back. He doesn’t need to hear the question. Which always puts me in the awkward position of having to decide whether or not to tell them he’s Deaf. Unless they ask him another question to which he would have to answer, for instance, “How old are you?” I don’t tell them. Why not, you ask?

People are embarrassed when they get caught talking to a Deaf person. It’s like they feel like they’ve suddenly made a fool of themselves simply by being friendly. When there comes a point at which I have to explain that the reason he’s not talking to them is he’s deaf, they either:

a) say, “Oh,” and walk away, pretending they didn’t speak to us in the first place;
b) say, “But he can lip-read, right?” because obviously he knew what they asked him. He answered the way they wanted him to! (I then say, “Yes, a little,” to ease their minds);
or c) whisper to me, “I’m sorry.” Depending on how I’m feeling on that particular day, I’ll either, say, “That’s okay, he’s just happy to interact,” or, “That’s okay,” and think to myself, Don’t feel guilty about it. It’s not your fault.

I sometimes wonder if, on some level, people know he has a good idea of what they’re thinking. Much of our body language is unconscious. We know we’re doing it, but we don’t always know when, or whether or not we’re controlling it well. And if that doesn’t make you feel self-conscious around a Deaf person, I don’t know what will.

Alex’s ability to read expressions gets embarrassing when he laughs at people. And he does, loudly and with great delight.  Take, for instance, a scenario in which you’re out for dinner with someone you’re trying to impress, and you put something in your mouth that you discover you don’t like.  You’re turning green at the gills but you’re trying to downplay it, so you grin and bear it while you continue to chew and swallow the offending piece of food. Meanwhile, at the next table, there’s a kid absolutely killing himself with laughter at the subtle expression you’re trying to cover up, while his mother, red in the face, attempts not to giggle at her offspring’s reaction.

All I can really do is try to distract him. I can’t say to the person, “He’s Deaf, and you look like you just put a live bug in your mouth.” It’s amazing how quickly people cease to be charmed by him in these situations. And they happen all the time. Of course I try to explain to Alex that it’s rude to laugh at people, but first, my vocabulary isn’t fantastic in Sign, so when he asks why, I’m at a loss. And second, how can I explain to him that he needs to suppress this wonderful ability to read subtleties that goes flying over the heads of most of the population? So I take it case-by-case and do my best to make everyone happy.

Ah, joy.

 

To meet Alex, click here.

 


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Just Jot It January 21st – Mittens

The word “mittens,” to me at least, conjures cozy feelings of being warm despite the cold winter wind and the icy metal scraper I use to heave the snow off my car. It’s just one of those words, isn’t it? Like “hot chocolate,” or “fireplace.” But today I’m here to tell you a sad story about a pair of mittens and a boy. It’s not a devastating story – it’s just a little heartrending. And it does have a happy-ish ending, and a moral too. You ready? Here we go.

One day last week I was in the car with my best friend, John, and my son, Alex, on our way to the grocery store. Alex had noticed a hole in his glove as he got into the back seat, so I assured him we’d be able to get some new ones where we were going. However, it’s a store that sells food, primarily, so the selection of clothes isn’t tremendous. We checked out the kids’ section first, but all they had was a few pairs of gloves Alex didn’t fit into and one pair of mittens. He saw those and his eyes lit up.

Yes! he said. I’ll take them!

But… I said…

No! No buts, said Alex. I want them!

Okay, try them on, I said. (It was just to make a point.)

So Alex tried them on. And they fit.

Yay! Alex said.

Okay, I nodded. Now tell me your name.

And Alex fingerspelled his name. Inside the right mitten. Alex is Deaf.

What’s that? I asked.

Alex drooped in defeat. And gave me back the mittens to put back on the shelf.

We went then to the ladies section where he found a nice pair of ladies gloves that he liked very much. And that’s what he’s wearing to school.

And that’s my sad but true story about mittens. The moral? Fashion and communication don’t always mix.

 

The “Mittens” prompt is brought to you by Candy at Rhymes With Bug. If you don’t already know her, please click on the link and say hi!

JJJ 2016

To find the rules for Just Jot It January, click here and join in today. It’s never too late! And don’t forget to ping back your January 21st post here!


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Just Jot It January 5th – 2016 (My Bucket List)

For the 2016 prompt I’ve decided to take a page from Opinionated Man’s book and write my 2016 Bucket List. Here we go:

  1. Finish my novel and get it published. (I cringe to think how many times this has already drowned in my bucket.)
  2. Get paid for something I write. (It might even be my novel!)
  3. Have a weekend to myself. In my house. Alone.
  4. Teach the dog sign language as well as voice commands so Alex can communicate with him.
  5. A boy and his puppy

    A boy and his puppy

  6. Get my house spotlessly clean top to bottom. (Look for this one on the list every year for the next ten years … a girl can dream.)
  7. Do something with the pot hole that is my back yard. (Okay, it’s not that bad, but it’s not that great either.)
  8. Keep the weight off that I’ve already lost. (This is starting to sound like a list of resolutions. 😛 )
  9. Finish writing the novel I said I was going to finish by Christmas. (My bad.)
  10. Get inspired some more!

What’s on your bucket list for this year?

The “2016” prompt is brought to you by Fiona at Fiona’s Favorites. Click on the link and have a read!

JJJ 2016

To find the rules for Just Jot It January, click here and join in today. It’s never too late! And don’t forget to ping back your January 5th post here!


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At a Loss for Words

Where’s your communication book? I’ll ask your teacher to tell you.

It’s the most common phrase that is signed in my household, aside from, I love you, and Go to sleep already.

The problem is, of course, that my son Alex doesn’t ‘speak’ the same language as I do, and sometimes I’m the one at a huge disadvantage. I, whose life consists of putting words together to make meanings clear, am unable to communicate with my own offspring. What kind of sick force in the universe came up with this irony?

Tonight I had to try to explain to Alex why he wasn’t able to eat from my plate. It’s something that I allow him to do on occasion–not something I allowed my other two sons to do–since he doesn’t eat much more than one piece of anything, being that he’s tube fed. But now, since I’m not sure I’m completely over this bug, it’s a no-no. Germs are not something I often talk about, and so once again I’m faced with my lack of knowledge, and my incompetence in being fluent in American Sign Language.

Can you fathom the frustration at not being able to say the simplest of things? With a hearing child, the conversation would be over in four or five sentences. “I’m sick, and if you eat from my plate you might get sick. Why? Because there are these things called germs – tiny things like bugs crawling around in my food. You still want some? I thought not.”

Instead? It’ll have to wait until tomorrow.

Don’t get me wrong – I’m grateful that I have the resource of the Deaf school to back me up when I need it, and especially that they are teaching my son to communicate with his peers. What scares me are the stories I was told by a few different Deaf people of their hearing families – that they grew apart. The Deaf have their own community. In fact “Deaf” is capitalized when the word is used to describe a person in the same way American is – because it denotes that very community.  It’s only by virtue of the fact that Alex has a global intellectual delay that I might have to care for him well into adulthood.

In the meantime, I’ll keep trying to learn his language. Because once he’s twenty-one and has to leave school, I won’t have a communication book to write in. And I’ll be at a complete loss for words.


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Communication is Fragile

I had a dream last night in which I traveled back in time, to the ’70s I believe, to speak to high school girls about what it would be like, in the future, to be able to communicate from anywhere. You’d think I’d have had a cell phone in my hand. But that’s not what I had.

In my dream I was carrying a piece of paper. It was like a receipt and it had words and numbers written on it. Strangely enough I remember having to go to a payphone to use it… but what purpose the paper served is beyond me. It was a dream.

When I woke up, however, it left me wondering about the fragility of communication. The paper was nothing but symbolic. What if I lost it? (The piece of paper or the ability to communicate – you decide.) What if I suddenly couldn’t read it because it got damaged? How much did it cost to obtain it? It was a receipt, after all.

Then I started thinking, what if I had five minutes to tell everyone I loved everything I needed to tell them? Could I be succinct? I think that’s the one positive thing the language of texting has provided us with… a shorthand. And it’s such a personal thing as well. Only if I’m in a hurry will I spell ‘you,’ ‘u,’ and everyone close to me knows this, and so I am communicating two things at once.

But what if we could all speak the way the great authors write? To be able to communicate a feeling – ‘All the world’s a stage…’ What if stuff like that just rolled off our tongues as easily as we wrote it? What if we could put real body language and facial expressions into our emails? Speaking from the perspective of someone who actually CAN communicate in two languages simultaneously (spoken English and American Sign Language), it would be wonderful indeed.

And yet do I feel as though, if I had five minutes left in this world to say everything I wanted to, I’m afraid I’d be at a loss for words.