Life in progress


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Update on Alex #2

I woke up from nine hours of sleep this morning and called the hospital before I got out of bed. The nurse I spoke to was a nice lady named Heather who introduced herself as someone who used to work at Alex’s school, so she knows a bit of sign language.

She told me he had a good night and was up early, out of bed, and following his nurse (the one on shift from last night) around in the corridors. He got tired of his IV, probably when another IV pole with his feeding pump was added to the mix, so he unhooked the IV. They left it off.

When Heather came in at 7:00, he took one look at her and knowing she had the ability to tell him off in ASL, he went back to bed.

“That was a couple of hours ago though,” she told me. “Now he’s following me around.”

He was doing okay, so I decided to have a shower and take my time getting to the hospital. Only to immediately be told to go home when I got there … by Alex. I sent this text to my best friend, John:

At the hospital waiting to see the doctor. Alex wants me to go home. I’m cramping his style. Sitting alone in his room while he hangs out with the nurses.

To which John replied:

I can sympathize. It’s hard to woo a nurse with your mom around.

So he’s obviously feeling better. But they wanted to keep him one more night for observation. His oxygen levels are still very low when he’s laying down, his heart rate is still through the roof, and he’s still working to breathe.

Hopefully he’ll be home tomorrow and all the heart issues will have arisen from the combination of the pneumonia and the extra drugs. And hopefully the antibiotics will work their miracle.

Thank you again for all your awesome well-wishes. I appreciate each and every one.


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…And Then Nothing Gets Fixed

I was walking out of Best Buy at 12:45 today when I got a call from Alex’s school. He was in the office, feeling unwell; would I come and get him. That’s not really a question. Ever. It’s a command. So I threw gently placed my newly repaired laptop in the car and drove over to get him. Best Buy had had my laptop for a week. It was shutting down without warning on battery power when the charge reached 66%. I figured it was a defective battery – they changed both it AND gave it a new hard drive.

Anyhow, I got to the school and was informed that my darling little son was feeling tired and wanted to go home. Yeah, not much of a reason. BUT, one I have no choice but to take seriously. First was the arrhythmia from the weekend, coupled with cold sweats a couple of days ago and then I was informed by the teacher that his lips had gone blue three times last week (thanks for letting me know sooner) and this all adds up in my mind to congestive heart failure. Regardless of the fact that he just went for an echocardiogram last week that showed no new problems, and ignoring the impish look of “I’m faking this” on his dear little face, I decided to take him to the emergency.

Six (count ’em) 6 hours later, we arrived back home. The EKG they did today showed there were no issues with his heart – neither did the x-ray. However, I must give honourable mention to the people who kept me entertained in the waiting room. The first was a heavily tattooed lady who lost her $1.50 in a vending machine and proceeded to inform a security guard at the top of her lungs, “IT WASN’T JUST A PENNY!” The second, and most impressive by far, was an elderly lady who clearly had no idea where she was, demanded in a tone fit for a Shakespearean Queen to be let out of her cage. Seriously, if that woman wasn’t still an opera singer – and her annunciation! It was out of this world!

Where was I? Oh yes, back at home. I ate my dinner while Alex was hooked up to his feeding pump and then I got my laptop out. New hard drive meant all the crap that comes with a factory-installed OS was present and accounted for, as was the particularly loathed Internet Explorer. So I’m sitting on my couch, miserably getting rid of everything I don’t want and … poof! 66% the laptop shuts down.

I’ll be taking the computer back to Best Buy tomorrow. Hopefully I won’t be taking the kid back to emerg. Still, don’t really know what’s wrong with either of them.


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One-Liner Wednesday – Among ‘Things I’m Glad I Didn’t Learn the Hard Way’

“Since Alex was born with a hole in his heart; there’s a good reason they didn’t fix it, I’d like the dentist to start giving him antibiotics before his visits: if a bacteria gets in when his gums bleed, the infection can go straight through his bloodstream to his brain.” ~ My son’s pediatric cardiologist, today.