I know I’ve mentioned before what it’s like when I visit Alex’s school for a special event. Walking down a hallway, jam-packed with students from Kindergarten to Grade 12, all of them chatting animatedly without a sound but the scuffing of shoes on the floor, is an experience not many hearing people are likely to have. I want to add that the shoe-scuffing is decidedly loud, however. I think that may be because Deaf parents aren’t constantly telling the kids to stop dragging their feet already, like the rest of us do. But I digress.
Unlike the above point, I’m not sure if I’ve mentioned the first time I went with Alex for a playdate. It was back when we lived in the Ottawa area. We only went to a couple, hosted by a Deaf mom, for her kids and some of their friends, all of whom were Deaf. I was lucky to have found them: I was pointed in the right direction by one of my American Sign Language teachers.
My first impression at the playdate, once we got the kids organized and sitting around a table with building blocks, was how eerie it was. If I remember correctly, there were four adults and five or six children ranging in ages from two to six, and the room was dead quiet. What I remember the most was how happy Alex was. At the age of six, Alex was probably more fascinated watching the adults sign and the kids communicate with one another without excluding him than he was with the actual playing. It was at that moment that I realized these were his people and I was not. As happy as I was for him, and still am, that he’s part of that wonderful community, being unlike him is one of the most heartbreaking things I have to endure as his mother.
It’s very strange to give birth to someone whose first language isn’t the same as yours.
My A to Z theme concerns the joys and challenges of being the hearing mother of my Deaf son, Alex. To learn more about his beginnings in life, click here to go to my first A to Z entry.
Good news! The pingbacks were working yesterday. So go ahead and give it a try, but make sure you check a minute or two after you post to make sure your pingback is in the comments.
Anyone who would like to participate, feel free to use the “One-Liner Wednesday” title in your post, and if you do,
you can ping back here to help your blog get more exposure. To execute a ping back, just copy the URL in the address bar on this post, and paste it somewhere in the body of your post. Your link will show up in the comments below. Please ensure that the One-Liner Wednesday you’re pinging back to is this week’s! Otherwise, no one will likely see it but me.
As with Stream of Consciousness Saturday (SoCS), if you see a ping back from someone else in my comment section, click and have a read. It’s bound to be short and sweet.
Unlike SoCS, this is not a prompt so there’s no need to stick to the same “theme.”
The rules that I’ve made for myself (but don’t always follow) for “One-Liner Wednesday” are:
1. Make it one sentence.
2. Try to make it either funny or inspirational.
3. Use our unique tag #1linerWeds.
4. Add our new, very cool badge to your post for extra exposure!
For my Deaf son, Alex, there’s no difference between a spider and a fire alarm. He understands what panic looks like, and he knows when I’m in one, but unless I sign why (which is difficult under the circumstances of real panic), then all he can do is wait until someone explains what the commotion is.
I could, and probably should, install special warning alarms in the house for him. The doorbell (first I’d have to get a doorbell) and the smoke detector are the two most obvious things to alert him of. I haven’t bothered yet because he’s never at home alone. And equipment is expensive. Just an alarm clock that either shakes the bed or lights up (which only works in the dark I’m guessing) …scratch that. I just looked up the cost of one at Walmart and he wants a Spiderman one. They don’t make them. On with a search.
But I digress. There are many circumstances in which a Deaf person can be caught short. Just two examples: alarms in hotels don’t normally exist for the Deaf, and a bomb threat in a shopping mall would leave a Deaf person who was out alone wondering which way to run. We don’t realize how much we rely on our hearing.
Again, another reason for having more people in society who know some sign language. So many things to advocate for, so little time.
My A to Z theme concerns the joys and challenges of being the hearing mother of my Deaf son, Alex. To learn more about his beginnings in life, click here to go to my first A to Z entry.
As the parent of two hearing children I’m cognizant of the need to quell my verbal outbursts when I am not best pleased. I’ve been known, when they were younger, to come out with words such as “schnozzle” after having stubbed a toe, or “fruitcake” having noticed that the thing I wanted to wear hadn’t made it into the laundry. But now that they’re older, and the one child I have left too young to hear the more expressive me can’t hear, I have fewer qualms.
However, (and there’s always a however, isn’t there?) flipping someone the bird after they cut me off in the car remains out of the question. But, (yes, there’s a but as well as a however) there are also accidental signs. Take, for instance, the sign for “very,” which is close to the sign for “fuck.” For “very,” you make a letter “v” (just like a peace sign) with both hands, put the tips of the four extended fingers together and move your two hands away from each other. For a visual, click here: https://www.signingsavvy.com/sign/VERY/7162/1 The sign for “fuck” is the same handshape (the “v”) with both hands, except the movement is different. For this sign, the knuckles knock together… the same as the word “meet,” only with that only the index finger is up. A visual for “meet me”: https://www.signingsavvy.com/sign/MEET%20ME/3877/1
It’s easy to see why you wouldn’t want to mix either “very,” I had a very good time at the fair, or “meet,” There’a a playdate at the park. I’m going to meet my best friend’s husband there, with the word “fuck.” No matter who you’re talking to. Especially your best friend’s mother.
Saying the right thing around Alex can be complicated. The struggle is real.
My A to Z theme concerns the joys and challenges of being the hearing mother of my Deaf son, Alex. To learn more about his beginnings in life, click here to go to my first A to Z entry.
Things are coming along well with the new book, Frankly, My Dear. I’ve received positive comments from the beta readers now and it has started going out to advance readers in anticipation of the April 29th release.
Here is a special offer for my followers:
I’d like to have more advance readers. My goal is to release on the 29th with 50 reviews on Amazon. I know that, in order to do this, I need to put more advance copies out. If you’d like to be an advance reader, please send me an email at don@donmassenzio.com and I’ll send you a PDF copy. Once I reach an acceptable number, I’m going to cut off this offer, so if you want one, please email me soon.
As an advance reader, I am sending a copy of the book at no charge. In return, I only ask three things:
Buck-Tick is a Japanese band who I was so impressed with right from the first time I heard them, that I’ve traveled to Japan to see them in concert. Twice, in the case of the lead singer, Sakurai Atsushi.
I thought I’d share the first song I ever heard of theirs. It’s called “Long Distance Call,” and was written about Mr. Sakurai’s mother and the last time he talked to her before she died. The band was out on the road, and he couldn’t get home to see her. Honestly, I don’t know how he keeps it together when he sings it.
Unfortunately I’m not able to copy and paste the lyrics. It’s sung in Japanese, but the translation is available; the lady who translates them prefers to have a link back to her site, which is here. However, if you watch the video, the subtitles are there and easy to read. You just have to click on the settings button (the cogged wheel) at the bottom of the video and you’ll see how to access them.
As you probably know, my theme for the A to Z Challenge this year is parenting a Deaf child as a hearing mom. I decided on this theme mainly because I hope one day to write a book on the subject. The A to Z seemed an easy way to compile my thoughts into something that could be organized into chapters. I’m not including every aspect of what it is to be Alex’s parent since not everything fits. But most of it is or will be here.
My plan is to market it as much a guide for people who have Deaf children, as for people who have hearing children. I hope to provide insight into behaviours, reading and understanding body language, and generally to teach parents and children how to spot and be compassionate toward those with limited abilities. Hopefully, without coming off as preachy. The book, if I write it, will be entitled, Don’t Talk With Your Hands Full.
I’m not going to ask you if you’d actually buy my book – I’m not here to put you on the spot. But if you saw something like it on the shelf, and hadn’t already read as much as I’ve written, do you think you’d be interested enough to at least read the back cover? Do you know anyone who doesn’t read my blog who might buy it? Basically, do you think it could be a worthwhile endeavour?
I appreciate honest opinions. Don’t be afraid to hurt my feelings; I take criticism well, as long as it’s constructive.
Nighttime is much different with a Deaf child than it is with a hearing one. Just how much, I wasn’t able to imagine until I experienced it. When I had my first two kids I quickly learned what their cries meant. I knew whether or not they needed my full or immediate attention, or if they were just whining for a bit of company in the middle of the night. In the case of the latter, I would call out to let them know I was right in the room next door, and that they weren’t completely alone. With Alex, of course, this wasn’t and still is not, an option, even though he’s fifteen years old. So whenever he calls, no matter what the reason, either I have to get up or he comes to me.
The next difficulty: signing in the dark. People who are both deaf and blind learn to sign while touching, but try as I might, I can’t convince Alex to attempt it. So on go the lights which, in the dead of night, blinds us both. And speaking of lights…
They are one of the two things that will wake him up when he’s fast asleep, the other being vibration. I can go into his room and talk normally with no problem, which has been great at times when he’s been in the hospital. The neighbours can party all night long, fans can rattle, his feeding pump can beep, the phone can ring – none of that disturbs him in the least. But if I touch his bed or shine my cell phone in the wrong direction because I’m looking for something, and he’s wide awake. For anyone babysitting, it takes a bit of getting used to. As it will for me, if I ever look after someone else’s child.
My A to Z theme concerns the joys and challenges of being the hearing mother of my Deaf son, Alex. To learn more about his beginnings in life, click here to go to my first A to Z entry.
I think I write better when I’m hungry. It seems almost like when there’s no food in my stomach, I’m not full of unnecessary things. It could also be that I can relax better on a full stomach, which makes me feel more tired. I do need coffee though. I have a hard time writing when decaffeinated.
It’s like the air, the atmosphere I’m in: I don’t need quiet, in particular, but I do need to be free of distraction to write. So if I’m in a busy restaurant, have a television on in the background, or music, I’m okay to write away. If I have Alex asking me questions every 45 seconds, I can’t concentrate. I’m almost afraid to try to write when I’m in the room with him – which is why I’m so far behind. He won’t allow me to go to another room. His insistence on getting attention is worse if I’m not beside him.
The other night my eldest one lined up the magnetic numbers on the fridge in order. I rearranged them to 8675309.
He got the reference. That made me happy, since he’s only 21 years old.